HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Reply
 
Thread Tools Display Modes
Old 05-11-2009, 08:36 AM   #1
KellyA
Senior Member
 
KellyA's Avatar
 
Join Date: Sep 2006
Location: Savannah, Georgia
Posts: 301
I can't tell you how much I appreciate your replies- I am so glad I wrote in. The current med (Levaquin) is NOT working- that's #4) and I am miserable.

Put a call in to my gyn and waiting to hear (do they not know these are agony and require a call back within a few hours?!) I am very very suspicious of a fungal inf. and want to try the diflucan. It is hard not to worry about something else though... trying to be positive.

Love,
Kelly
__________________
dx'd 05/06, 37 years old
er/pr-, Her2+, grade 3
double mastectomy, immediate reconstruction- implants
Stage 2b, 2 tumors- 2.2 cm and 0.6 cm, 3/5 + nodes
all scans clear
genetic testing- negative
06/06 began dd A/C x 4, 12 weekly Taxols w/ Herceptin
30 rads
Herceptin weekly x 1 year
Herceptin completed 08/07
Port removed 12/26/07 MERRY CHRISTMAS!!!!!!
05/17/08 Two year anniversary NED

"We gain strength, courage, and confidence by each experience in which we really stop to look fear in the face... you must do the thing that you think you cannot do."

-Eleanor Roosevelt

KellyA is offline   Reply With Quote
Old 08-20-2009, 05:31 AM   #2
Karen Wheel
Senior Member
 
Karen Wheel's Avatar
 
Join Date: Jul 2009
Location: Sardegna, Italy
Posts: 362
Re: Has anybody ever heard of breast cancer recurring to the bladder/kidneys?

I am late to this discussion - and I found it when searching for threads on "bladder" as I am worried about me ... after I started chemo and Herceptin my bladder is well, tweaked --- and then I just saw the thread from the other day on Ki67 that linked this to "bladder cancer" (along with otheres) so.... was again, a bit worried.

My oncologists are trying to get me into see a specialist for the bladder - so I'm waiting on that.

I don't have an infection (they tested - twice!) but I feel wierd and seem to use the bathroom every hour (hour and half) and it is not normal ... feels tight and like you have an infection coming on --- strange.

So, we'll see-

FOR those who are fighting bladder infections (don't blame your husbands!) ;-) Try some d-mannose - it works great and usually cures anything (that is e-colia based) .... and helps over all if taken often.

I have used it lots in the past and it always works. I was using it daily for months during chemo - and that is when this all started.

You can take it up to every 2 hours if you are having a bad attack. (I like the powder) - sending a link here to some:

http://www.vitaminlife.com/product-e...oduct_id/48331

If anyone has similar experiences with bladder issues with Chemo/or Herceptin - please let me know. thanks!
Karen
__________________
Karen Wheelhouse Age: 46
Facebook id: Karen Wheel
2-09 – Age 44 -Biopsy-Cancer
3-09 – Right Quadrantectomy. Clear margins.
3 lymph nodes taken - all clear
Tumor results: Stage 1, 1.5 cm, Her2 +++
Est positive 80% - Prog 10% - Ki67 postive 30%
4-09 – Became a vegan! pH balance of body - cancer can't grow in neutral pH!
4-09 Started Herceptin & Chemo (9 weeks of Navelbine *)
* FYI - when coupled with Herceptin has the same results as more toxic chemo. No brainer!
8-09 - 30 RADS
9-09 - Said NO to hormone therapy
4-10 Finished Herceptin!!!!


7-10 PET Scan & other exams .... All clear! YIPPEE!!!!
11-10 Breast, organ Ultrasounds and lung x-rays all clear no changes ... NED!

2-25-2011 --- 2 years from surgery and NED!!!!!!
7-2011 Clear bone scan and full body and head MRI! NED! NED! NED! ;-)[/SIZE]
Karen Wheel is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 08:59 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter