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Old 07-04-2007, 06:47 PM   #1
carykim
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Location: Lake Oswego, OR
Posts: 14
I don't know about the website you quote, but as far as what your onc was describing with "sophomore and junior" cancer cells hiding out, I know from experience this is true.

DCIS (ductal carcinoma in situ) is what IDC is before it learns how to break out of the milk duct and invade the surrounding breast and lymph nodes. My IDC tumor showed up on the ultrasound, but the DCIS was invisible. I had a lumpectomy and there was DCIS on the edge. So I had a second lumpectomy and the whole 10cm piece was DCIS. Then I had a mastectomy and there was more of the invisible DCIS and then invasive cancer on the other side of it.

The slime coating stuff, I've never heard before. I'll click on the link now...

xo
cary
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DX @ 34, Oct 2006
IDC, grade 3, Stage III
ER+ PR- Her2+++
9 nodes +
DD AC/T
Tried lumpectomy 2x Failed
Bilateral Mastectomy 3/07
Radiation 33x
Lupron + Tamoxifen for 3 months
Herceptin started 6/07
Ooph + Femara 7/07
Zometa
Neratinib Trial 1/10
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Old 07-05-2007, 03:03 PM   #2
Adriana Mangus
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Join Date: May 2006
Location: California
Posts: 668
Mastectomy

I should have listened to my instincts when I was first dx in 94, I asked the surgeon to remove the breast and he convinced me to keep it. After surgery he assured me that he had "got it all" .

I knew, my gut feelings were telling me otherwise, here am almost ten years after initial dx, having to deal with a recurrence to rt lung.

Glad you were smart enough to have a second lumpectomy, then a mastectomy. Always listen to your instincts....

I'm happy for you!!!.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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