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12-24-2006, 11:20 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Spokane/Warden, WA
Posts: 67
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Christine and Joe
thank you for helping to save my life.
dee
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12-25-2006, 04:48 AM
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#2
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Thank you!!!
HI Christine and Joe,
I can never thank you enough for managing this website. It is my lifeline to information, support, and to others like myself who are dealing wiht HER2 breast cancer at some level. No words can express my appreciation for your dedication and help and support.
Thank you and I wish you all the best to your family during this holiday season and the New Year beyond!!!!
Barbara H.
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12-25-2006, 06:32 AM
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#3
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Christine and Joe
Thanks to both of you and all the other amazing women on this board, I plan to be here to celebrate my 5 year anniversary in Feb. I was one of those given a poor outlook in early 2002, and with all the knowledge from this board, I am still going strong.....Merry Christmas to ALL!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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12-25-2006, 08:03 AM
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#4
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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Again another thank you for all you do for us. This is one of my lifelines. Nearly, 6 years ago, diagnosed with IBC and her2, I was given no long term survival from several doctors. Well, today I am happy to say I am still hear and I do consider 6 years in March long term! My quality of life is good and I am enjoying every minute of it. Christine is right we have come a long way and will continue to do so. Sending you all a big Christmas hug and a Happy healthy New Year. I said a prayer last evening for all our families on this board who are with out their loved one today. Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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12-25-2006, 11:17 AM
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#5
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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I want to thank you from the bottom of my heart for all you do to keep this website up and running. I also want to thank all the wonderful women here. Since I really do not have anyone that I can personally lean on for support, I surely would have lost it many times if it had not been for the wonderful support, advise, and knowledge of the women on this website. I wish everyone here a Very Happy Holiday and a Happy, Healthful, Prosperous New Year.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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12-25-2006, 12:59 PM
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#6
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Senior Member
Join Date: Nov 2005
Posts: 943
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Thanks Christine, and a very Merry Christmas to you and Joe.
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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12-25-2006, 02:17 PM
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#7
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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Thanks so much Joe & Christine for this site. It, too, has given me much hope. Best of everything and Merry Christmas!
__________________
Andi
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Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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