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Mickey's latest
I have not posted lately, awaiting medical newsbut have been lurking. I find this sight very comforting and many of us keep coming back even if gone for awhile. You guys are so supportive and informative.
I just got the results of my second followup MRI. To recap, I had one brain met, 5mm beginning of December. It was successfully zapped with gamma knife and followups in January and February turned up clear. April, however, showed 12 new tumors, largest one 9MM. I did 15 rounds WBR, finished in June. August MRI showed progression of tumors, but no new ones. My radiologist thought maybe this was due to swelling, and wanted to wait 4 months for another. My Med onc was not so sure and wanted a followup a month later. Fast forward this week. I had the scan Monday. All tumors have slightly reduced. No new ones. Good news, I guess. Does anyone know how long they can keep going down or at what point this is what I get? I had no problem with the WBR. My mind is still intact. I did not take any steroids and am glad I did not.
Some comments from all my lurking. I am right handed. Herceptin alone apparently does not work for me, However, with other chemo's it works great. I am currently on Abraxane/ Herceptin for a few nodes in the chest area. I was very afraid of getting Neuropathy since I am so active and my quality of life would greatly diminish. Abraxane apparently causes worse neuropathy than the other taxanes. I started using Glutamine (over the counter) and it works wonders. I have no joint pain, no leg cramps(I had them at night) and no neuropathy. I do not follow the directions. They call for a teaspoon 3 times a day. (I hope none of you take this as me trying to play doctor). I will do a part 2 as I am out of space.
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