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Hello Pat,I'm in UK too,I have bone mets.
You are right,we are way behind here.
There is a girl called Patty Z who's refused WBR for ages now,going for other options but she is in USA and also in hospital this week dealing with a completely new cancer[poor Henny Penny,she's a great girl,the sky keeps on falling on her head]
She maybe online soon and hopefully up to replying
Keep on looking and hang in there,have you tried Royal Marsden?
love Ali xxxxx
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