Re: Calling all stage iv sisters
I guess I'm not really that long term yet, but here goes: I got scan results back today - there's still inactive scarring in my bones (T10/11), but otherwise, I got a clean scan - nothing in the organs, and brain is clean, too.
I feel blessed and very, very grateful. I have been on Herceptin / Perjeta / Xgeva only since July 2014, and can at this point lead a perfectly normal life (except for treatment every 3 weeks, and scans). When I was first diagnosed I felt like I needed to get my things in order immediately. Now, I am hoping I will still see my daughter have her first double digit birthday in 3 1/2 years.
One day at a time. Life is good.
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Annette
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03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic)
04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol)
07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working
10/2014: STABLE!
01/2015: STABLE!
04/2015: STABLE!
08/2015: STABLE!
12/2015: BRAIN METS. BODY STABLE.
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