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Old 05-28-2013, 02:17 AM   #1
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
FOB not well. Needs ideas.

FOB posted in her already open thread but it seems it got lost so I am pasting her post hereunder.

ANY IDEAS FOR OUR FOB? FOB, I hope you are out of the hospital, patting your dog.. Hugs. Hugs. Hugs. Michka



Re: Not good news..
thanks friends

Well i am writing to you from the hospital after I nearly suffocated after my first dose of navelbine +h. I was put on high O2. I have stopped oxigen now but I am very breathless when I have to move. cant walk much.

I have been suffering from spike in temperature for 6 weeks which makes my quality of life very poor.

I was not accepted on the trial around where i live and they took 5 weeks to look at my case and wasted my time.

Scan show progession to new places: neck and liver in 8 weeks.

I am a mess after navelbine chemo, my lung hurts and cant manage to get any sleep at the hospital 4 days. I have decided to go home tomorrow whatever.

I have won many many battles, endured many treatments. No one can say that I have not turned every stones and fighted every corners kicking and scratching. But I am now showing the white flag.

For the first time I am happy that I don't have a family, because thinking of not seeing my dog in the future is soooo painful already. do you know when I cough she comes and lick my neck she is amazing and so sweet. I have found her a lovely god mother who has a dog already and the dogs play so well together so I know she will be happy.

I know that I will not be accept in any trials in my state and chemo sent me to hospital. And cant travel any more for a trial anyway. If you have any idea let me know

not good news indeed

All love
__________________

35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies

Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..

superior vena cava blocked: stent but face remains puffy

April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.

Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.



'Under no circumstances should you lose hope..' Dalai Lama
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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