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Progression. :(
Hi all
I am stage 1V from diagnoses, nearly 2 years ago. I had Abraxane with Herceptin, and they led me to dance with NED. Then another lump was found, and I had a lumpectomy and axillary node dissection, and DCIS was also found. I continued on Herceptin only. A node in my chest then came back, and we watched and waited, still only on Herceptin. Now it has doubled in size from 1cm to 2 cms,and another has appeared. My onc thinks I should wait longer before restarting chemo, as I have good QOL, with few s/e from Herceptin. She would like to wait another 3 months and see then, if the spots have grown significantly. She also said she understood if I wanted to act on it sooner rather than later. She mentioned a TDM1 trial starting in Melbourne (which is about an hours drive from where I live) In Australia TDM1/Kadcyla is still only in trial stages. She stated that this may be my only chance at receiving TDM1 (EVER) as it will be years before it is available to all here. I am thinking that I will go for the trial, as soon as I can get on. Does anyone have any thoughts on this, or advice?
I realize as Stage 1V that I am very fortunate to have had a chemo break for so long, but am still saddened at the thought of progression and returning to chemo.
I think I need to use one of Denise's voices to help out! Lol
Dawn xx
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Dx May 27 2011, age 43
Stage 1V 3.6cm breast lump, spot on lungs, nodes chest + neck
HER2+ ER/PR-
Abraxane weekly - 16 weeks
Herceptin every third week
September 26 2011 N.E.D!
Herceptin ongoing
8th Dec 2011 Brain MRI - clear
20th Dec 2011 bone/cat scan clear still NED
April 2012 scans show axillary node lump - ? what to do...
June 2012 Axillary node dissection 1/11 nodes affected, a wide local excision shows DCIS. Now what to do again? Watch and scan 3 monthly
April 2013, two spots in nodes to chest wall, start TDM1 (Kadcycla) as part of clinical trial
July 2013 stable
Oct 2013 progression off TDM-1 (Kadcycla)
Nov 2013 radiation to lymph nodes in sternum
Dec 2013. Mastectomy right side, pathology shows tumour was HER-2 negative, no wonder TDM-1 (Kadcycla) didn’t work!
April 2014 NED. On Herceptin only
August 2014 NED. On Herceptin only
March 2015. NED. On Herceptin only
September 2015 NED on Herceptin only
March 2016. Pulmonary embolism, Clexane injections daily forever. Still NED On Herceptin only
Nov 2016. Bone Mets in ribs - Radiation. Don’t know if bone Mets are er-/pr-/HER2+ or triple negative.
Can’t give self injections on to tablets (Xarelto) for blood clots.
2017 NED - On Herceptin only
2018 NED - On Herceptin only
2019 NED - On Herceptin only
2020 NED - On Herceptin only
2021 NED - On Herceptin only
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