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My sister had Bilateral/Gemzar kicks my butt
Quick update...my sister had bilateral mastectomy 1 week ago. Lucky she opted for this, as they found a IDC on the other side that did not show on the mammo, the breast MRI, or the ultrasound. They also found a second IDC on the left affected side, where the papillary BC was found. They did bilateral sentinal nodes and all nodes taken 7 & 5 were negative....she will find out her course of treatment when she meets with the onc. on the 10th....she is Triple Neg. by IHC and Fish. She spent a few days with me after her surgery, which took 6 hours on the table as she had tissue expanders placed. She also required 2 units of blood. She came home with 4 JP drains, hoping to get 3 out when she sees the Plastic Surgeon Monday.
As for me, the Gemzar is not only doing a number on my nodes, but also on my other blood cells...I was unable to get my 3rd treatment this week as my white blood cells, my hemoglobin, my neutrophils, my platelets etc were all too low.....1st time ever on everything but the whites! If not improved, I will be getting a transfusion to boost my hemoglobin....so I am in a holding pattern, hoping my CBC shows a miraculous recovery. I am very happy that the nodes are shrinking after just 2 treatments....I also got the Decadron discontinued, and am working on getting the Zofran IV stopped if possible....
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"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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