Re: Need your Help/Advice - Got Dx with Brain Met
Thanks again everyone. StephN; I just added Brain Pet to my list of questions. I just had a full Pet scan in July ’10. A lot of sh** can happen in a short time or they miss stuff. CourtneyL: I now know that brain stem mets can be treated successfully. What I was reading didn’t sound promising.
It looks like the Gamma Knife is the preferred method. I know in Ct the only one hospital; Yale has the Gamma. It’s out of the area where I am being treated but my Oncologist is great and would send me to the best place.
Sitting here waiting for the phone call, I am reflecting how grateful I am to all of you to share your knowledge and give support. I can’t imagine another place to get this information. The HER2 site and members are a treasure.
Kris....
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06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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