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Old 08-24-2010, 05:39 PM   #1
Adriana Mangus
Senior Member
 
Join Date: May 2006
Location: California
Posts: 668
News from Adriana

Hi,

Hope everyone is doing well.

1. After going back and forth, first with my medical condition and second with some uneasy feelings I had but couldn't explain, the cruise was cancelled.

It turned out to be a blessing from the sky. My mother was admitted to the hospital Thursday August 12 for a middle stroke, it turned out her left leg had no circulation and it was turning blue. We --brothers and sisters had little time to react to what ensued after her first days in the hospital. The medical internist decided that it was better to have my mother's leg amputated. We struggled with the decision but had no choice nor time but to consent to the procedure. It was either leave it alone, or let the infection take over her entire body--wich it would have been too painful and horrendous for anyone to witnessed. Right after surgery she went into cardiac arrest, and a few hours later she was gone. My mother was buried Friday, August 20th. Please say a prayer for my mother, her name was Fernanda Garcia.

2. Now this. After waiting for about six weeks, Kaiser approved my participation in the TDM1 Trial.
I'm greatful to have finally have been given the ok by the Insurance company. The first cycle will start September 7th. I'm also asking for prayers for me, for the drugs to work in my body and also to get a relief from the harsh chemo drugs I've been receiving from the last seven years.

I know I'm asking too much from you, but under these circumstances, I know you can understand my needs.

I will keep you posted as the trial progresses.

Much love to you,

Adriana
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane

Last edited by Adriana Mangus; 08-24-2010 at 05:44 PM..
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