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Another Twist in the cancer
Still trying to regain my strength...seems it is at a much slower pace than I expected...my incisions are healing, but I am still having a few breathing problems...left lower lobe of my lung is partially collapsed and i have a hemidiaphragm...which may have occured from the surgery.....both make breathing a little struggle at times, and sleeping a pain in the a**....
I also have been having a problem with the left side of my neck swelling.....then after I am up, the swelling lessens but does not go away totally....saw the throat surgeon this week and seems I have developed lymphadema in the neck...rare but not unusual with all the lymph node involvement i have in the area. Now I am sleeping propped up on my back and the swelling is almost nill...just an FYI as i had never heard of this.
Wont know until scans if the Cytoxan and Methotroxate are helping...odd that I get nausea from the Cytoxan...i have never had nausea from any chemo before, so this is a new game.
Time to go strengthen the lungs with my spirometry toy....you are all in my thoughts and prayers even though i have been lax in posting...My son recently lost his home to a tornado here...the house that I raised my own children in, and had been in his Dad's family since 1897...he and his wife and children are safe but devastated....funny how fast our lives change!
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"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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