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Re: Scanxiety Confirmed, Progression Shown
Dear Sheila,
I am so sorry that you have to regroup. I believe it was Carolyn who pointed out that hearing the news might be the low point in the darned roller coaster ride. (someone let us off!!! We've had enough fun now.)
We both know that you are up for another loop...so.....acknowledge the sadness, take a deep breath, gather your wits for another round.
REMEMBER!!!! there are a lot more options. Try the Avastin as it served you well in the past, if that doesn't work can you go another round with a taxane? Abraxane worked well for me. And of course, our silver bullet TDM-1 which I thought Joe posted something about compassionate use.
We know that you never take NO for an answer. Please keep up the good work. If you need anything from us...let us know....Lots of energy coming your way...Lori
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2007
Oct - Diagnosed - Stage IV 5 c.m. IDC - Left Side er/pr- Her2+++ Node + 2/14 - Single Liver Met Double Mastectomy Nov - Begin T+H 2008
Feb-Complete 6 cycles- T&H- NED
March - Continue - Herceptin Only
April - Rads for 6 weeks
2009
Continue Herceptin - Continue NED
April - Recurrance- 3 cm. Liver Met
May - Cryosurgery
June - November - Abraxane + Herceptin
Aug - PET/CT - CTC = 0 Back to NED
2010
January - Continue NED
July - Recurrance - 3 cm Liver Met CTC=1
August - Cryosurgery #2
August - November Navelbine
November - Back to NED - End Navelbine
2011
Feb - Recur - 4 cm Liver Met - Same Left Lobe
March Surgery it is -Couldn't get a clean margin
July - Confirmed continued liver involvement
August - Begin Herceptin + Tykerb
October - Mixed results from H+T
Add Abraxane + H + T - Nov - April
2012
January PET Scan - It's working!!
April - Back to NED
July - Recurrance
August - Begin TDM-1 Trial (Taxol + TDM-1)
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