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Old 10-24-2009, 11:28 AM   #1
Cal-Gal
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Join Date: Jun 2009
Location: Los Angeles, CA
Posts: 309
Problems with my Port--any one else had this experience?

Has anyone else had this or a similar issue with their port?

I had my port placed about 3 and a half weeks ago-yesterday was to be my 4th Herceptin treatment through the port--the previous 3 rounds of H went fine--

However they could not get a blood flow-they pumped me with several flushes of heparin--and then something else--when that didnt work they gave me a shot-through the port of a blood thinner--starts with an "A" forgot--as I didnt write it down--that took 30min--after my H which was given in the vein---they were able to flush it(the Port)--they said if they had not been able to, I would of had to go to the Hospital for a dye test??

They said they will try again next week and see what happens--but for now it is flushed---

I just finished #20 of #52 treatments and have a quite lengthy appointment schedule in front of me---

Also was just not in the mood for dealing with something else.....

I have some weird swelling-looks like maybe fluid in the center of my chest along the scar line and below it-and above-- (bilat mastectomy) always had a bit of tissue about the size of a quarter-between where my breasts used to be--this is now same area but larger and swollen-ish--

Onco checked and did not palpatate a lump-(either did I)
already have appt w/Dr (surgeon) for that next week--

Anyone had that either???

Thanks so much---
__________________
DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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