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Old 06-30-2009, 08:07 AM   #1
madubois63
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Join Date: Feb 2005
Location: LI, NY
Posts: 660
Hi from madubois63

Well, this hasn't exactly been an easy year for me. I've been in and out of the hospital several times over the last few months for many reasons. Because of all the heavy steroids I've take, my hips have died - physically/literally. The blood flow to the bones has been cut off and the femur heads are cracked in several places and are collapsing. Originally, I needed one hip replaced but now it shows that I need both hips replaced. I was scheduled to get the first one done during the first week of June. I was breathing heavy and very exhausted. Turned out I had pneumonia. I took my first ride in an ambulance from the cancer clinic to the hospital. They didn't want to move me without oxygen. They drained my left lung (all my problems have been on the right side). I stayed for a week then got to go home. Rested, rested and then did some more resting. My liver enzymes started to go up so they wanted to put me back in for a liver biopsy last week. Since it was my daughter's prom and graduation, I asked if we could hold off until all was done and they said yes. We increased the steroids and I got to see my daughter off to the prom and attend graduation. It was amazing and another milestone for me just to be there. I came in all packed Yesterday morning to be drained and have the liver biopsy. After more blood work, they decided not to do the biopsy because my numbers are going down in response to the extra steroids (almost normal in just a few days). I am now waiting to get my lung drained and I could possibly go home today or more likely tomorrow!!! I've lost another 20 lb over the last month even though I am eating. When I went to get dressed for my daughter;s graduation, nothing fit. I was excited, but everyone is yelling at me. I truly have the weight to loose, but it needs to stop really soon. I can't afford a new wardrobe. I can't eat this morning and am starving. So that's a pretty big nutshell. Thanks to all that have missed me. I hope everyone get s some sort of relieve or a big huge miracle. Love to you all....
__________________
Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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