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Old 02-06-2009, 09:25 AM   #1
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Red face Alive but worried!

Hi Everyone,
I went for my breast reconstruction surgery by gluteal flap (buttocks) and almost never came back. The operation lasted 7, 5 hours.
I had an internal hemorrhage that they didn’t see for hours and although I kept saying I was feeling worse and worse, they didn’t understand. This went on for 3 hours. I was getting weaker and weaker and at the end I could not speak or even raise my hand to ask for help. Strangely, I was very calm. I realized I was about to die and thought of my loved boys and companion. I was so weak and my brain was working so slow that I had no fear. And then a miracle happened. A nurse from intensive care walked by to ask her friend nurses something personal. She understood what was happening. Then within 2 minutes I had 5 doctors and nurses around me and I fainted.
I had a 2 litre transfusion which must be half of my blood volume. (red cells plasma and platelets).

This happened 12 days ago. Now I am home. I feel very very tired. I am so afraid of the consequences of this massive transfusion.

I have 2 questions maybe someone can answer:
Can Faslodex have accelerated a hemorrhage? I ask this question because they are puzzled and did not really find where the hemorrhage started.
I am on Faslodex since November. I have no metastasis but I could not support Aromasin very well. My onc suggested switching to Faslodex.

Worse: I read people with cancer who had a transfusion had much higher recurrence rates.
Anybody know about this? I want to know the truth.

I feel very down but I can tell you I am so happy to be here on our forum,
Michka
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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