Hi Kim
I just had to say hello. Oddly, I got an email from Vicki today and hadn't heard from her in quite awhile.
If I were you, I would make an appointment to see Eric Winer at Dana Farber (since it is not extraordinarily a long drive for you) and discuss with him what his opinion is about going off of Herceptin (or lengthening the time between infusions - a weaning off process perhaps). Dr. Winer is an expert in Her2 bc as well and may be able to give some good advice to you on this subject.
Big hug to you!
Love, Becky
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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