Bummed
I have to share with all of you that I'm very scared. I've had one brain met which has caused lots of problems. After having stereotactic on it twice it appears it is growing again. I'm having a pet scan Friday to determine if it is necrosis or active - but they are pretty sure it is active. The only option I have here in the U.P. is to have surgery to remove most of it and chemo chips planted in it. I reviewed my info about Gamma Knife and it states that it often works on radiation resistant brain mets so I may be making a trip to Chicago where I had that done to the base of the first tumor I had removed.
Needless to say, I am very nervous and scared.
If anyone has any helpful information I would like to get it.
I would also like to hear from people who have had WBR and how it affected them as they are thinking that might be a wise idea so that chemo can cross the brain barrier to prevent this in the future after I have this treated as there may be more "seeds".
If you are able to send positive/success vibes my way - I could sure use them right now and anyone who has helpful information!
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Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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