Tykerb/Herceptin

[Esther]

I started taking Tykerb as soon as it was approved in March 2007, things were going really well, until my onc thought I should drop the herceptin and stay on just tykerb. Why I don't know.....I went with and within about 50 days saw some progression in what was thought to be scar tissue in my liver.

Went back on Herceptin, and also had cyberknife done in March 08, on the one liver met. The rads onc. at Stanford, indicated that the first, largest lesion is often difficult for chemo to get.


Shortly after that, I secretly went back on tykerb as well as the herceptin i was getting at my dr's office. I still had a supply on hand and started with that. I was thinking in terms of prevention, since i have already been diagnosed with brain mets.

I'll have an MRI and appt with the neuro at Cedar-Sinai next week, so we'll see if the Tykerb is helping any.

Last week my onc told me to add the tykerb to the herceptin, I just said, "hm...ok, I may need a refill called in...."

So know I'm on just tykerb and herceptin and hoping for the best.

How many women are on just tykerb and herceptin and having good results?