T-DM1 - need advice

[eric]

Hi all,

Caryn continues to have a very hard time with side effects on this weekly trial. The worst is the cysts that the drug seems to be causing in her eyes. She has become incredibly sensitive to light and is now wearing sunglasses day and night. She's seeing a cornea specialist who is trying to keep it from getting worse but we're all nervous about any permanent damage and the impact this is now having on Caryn. As a result of me asking the Dr at Sloan to reduce the dosage or frequency, she's contacted Genentech who has stopped Caryn's treatment until they see improvement in her eyes. The drug was kicking the cancers butt but I'm now very concerned about the non activity as she's now had only 1 treatment in the last 4 weeks. This seems to be a great drug and don't want to stop it but also don't want to sit idly while the cancer builds up.
I welcome thoughts and suggestions.
Eric