Need Help, please
Hi everyone: I had an appointment with my onc 1-22-08, here's the scoop.
Last ct chest scan shows tumor is growing so a change in treatment is necessary since I have been on navelbine twice and it has finally lost its effectiveness.
Onc said that since am doing well and I feel great that he's hesitant to put me on a taxane. He mentioned neurophaty, hair loss..bla bla bla..
My situation is unique to him since mets to rt lung since 2003 has been localized only to that area. I do feel great but I know I need to keep this monster under control...As far has hair goes I do not care if I loose my hair again..I just want to be here for my husband and daughter, bald or not.
Onc said that he was going to meet with his colleagues and present my case to them before making a decision to whether put me on a chemo or radiate the lung. Onc has never treated anyone with my condition with radiation...he did mention that people with lung ca do get radiation in their lungs and some get to be NED for long periods of time, but that's not my case, since I do not have lung ca.
DO you know anyone with mets who's received radiation and has done well?.
I do not want to receive radiation unless there is proof that it's going to work. Other thing the onc mentioned is whether to continue with herceptin along with radiation, or discontinue herceptin during radiation.
I have an appointment before February 19th and will need to make a decision then. Even though I still do not have information regarding his meeting with his colleagues, I would like to know if anyone in this site has known anyone who successfully has gone through radiation and/or would like an opinion regarding this situation.
Please I need all the help you can provide me with. Thank you so much.
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1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.
2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.
2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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