Need Help...anyone please!!!!

[TriciaV]

Hello and let me quickly bring you up to date. Some of you may remember me from a few months ago.... I lost my name and profile, when the idiots messed are sight up and was so busy I just got around to getting myself back on here to re-register. So I am 32 and was diagnosed this Jan 2007 of stage 3 invasive ductual Carcinoma. Had 2 rounds ACH and then 6 rounds of CTH (carbo, taxo, herp) I had Radical Mastectomy with 27 nodes removed 9 of those were ca positive. I completed 34 rounds of rads. I have 18 weeks of Herceptin Infusions left ( yippie) and I started Tamoxafin about 30-40 days ago...... so here is the question. I am having major bone pain...in my right shoulder which is my cancer side...right elbow, right side of neck..... right and left ankles. I wake up and feel like I must be an 80 year old arthiritic person. I was declared cancer "free" about 30 days ago (praise God) but I know how this ugly disease can be so I take that to heart. I am the Mother of 3 children... my baby is 2 and my older kids are both 9. I have a awesome husband and great support. But I am freaking out with all this pain. I am not joking I have to wake up at 6am take a vicodin go back to bed for an hour and then get my kids up and going once I am out of pain. I talked to my oncologist a little about it and he says I am too young to be hurting like this...excercise more, walk...blah blah blah. I have read that the Herceptin and the Tamoxafin both can cause bone pain. My oncologist is great at treating cancer but thats it...he doesn't address the physco-social needs of a cancer patient or the after affects of treatment... he basically had me in there told me there was no sign of cancer but they did believe that it was there microscopically and to get back to "normal" what the hell does that mean???? I am a very strong person and usually have a high pain tolerence but this is really kicking my butt.... also being this kicked down is making me really depressed. I mean before I was pregnant with my two year old my husband and I played on a co-ed street hockey team, and now I feel like it takes everything I have to get up and do my motherly roles. ANyone with any advice or suggestions are greatly appreciated!!!!!!!!!!! Is this the Tamoxafin and I need to just get use to the drug... aaggghhh so frustrated. I should be feeling so much better right? so sorry this was way too long just feeling realloy lost.

TriciaV