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Old 08-05-2007, 03:08 PM   #1
Chelee
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Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
I can't change things but...

I'm a bit disappointed after reading my oncologist progress notes yesterday. When first DX my 1st onc decided I should get TCH on a 3 wk schedule & herceptin wkly. He didn't notice my ANC count was in the dirt & I landed in the hospital week 3 of chemo. So I changed onc's once out of the hospital & I was reading the progress notes I have here and I see where my current onc said her preference would be to have me do *weekly* TCH because it was proven to be much more effective then every 3 weeks.

If that is so...why didn't she tell me?! (Rhetorical of course.) I was coming in *weekly* at the time for my herceptin anyway. It would of been easy. She never told me that wkly had been proven more effective. I can't help but be a bit ticked off. I know I can't change the past and can only go forward but I am just venting a bit! How many of you were on a *weekly* schedule? And if you were did your onc tell you studies showed the results were better then the 3 week schedule?

Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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