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Old 07-30-2007, 05:49 AM   #1
Believe51
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Join Date: Jun 2007
Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
Posts: 2,999
Exclamation HONEST OPINION PLEASE!!: Are We Reaching For The Big Guns Too Soon??

Today is the last day for my husband's WBR, he was 4 days behind in his pelvis radiaiton but has chosen to stop today due to some bad belly problems (for ex: he had a gas bubble that finally popped in his belly and he thought he was going to pass out). A scan in a few weeks and the chemo or gamma knife if need be.

Although we have done our research about the next regime, second opinions from DFCI & another top Oncologist here, and we feel pretty confident with the new journey, I'm scared. We have always embraced the fact that he was very ill and had a poor prognosis, but that never stopped us. It never stopped us from BELIEVING. We never will!!

As we sat quietly Friday night with ice cream on a park bench in a quaint town square on the water (yes...we cheated and we loved it, kinda felt like normalcy too!!).....it hit me. Like the hot asphalt burns your feet when you walk or the way the sun scorches an already sunburned face!!!!!! I panicked and warmth filled my body from my feet up and sweating I asked:

Tykerb/Xeloda, are we reaching for you too soon?? Are we giving up in panic before exhausting other options?? Are we making demands for something maybe we should not demand right now?? I know that is a question only we can answer for ourselves, we are not having second thoughts because a problem was pushed through, for we have researched and pondered these questions well. We have very educated people involved in his treatment and they have told us about those options and we are very aware. I know we WANTED THIS COMBO because we wanted this combo. Part of me does panic a bit, come on let's face it; Stage IV HER2+Inflammatory Breast Cancer with mets to all bones & brain!!! I do not know how much time we have here to experiment, if you will.

MY QUESTION FOR YOU GIRLS: (I am asking for honestly..no sugar coating, put aside your feelings for me and answer from the heart)

In your opinion(s) about the journey thus far from the posts and the bio below, "DO YOU THINK WE ARE GIVING IN TOO EARLY TO THIS DRUG COMBO?" and "IF THIS WAS YOUR JOURNEY GIVEN THE SPECS OF OUR SITUATION WHAT WOULD YOU TRY FOR A COMBO?" I know that everyone is different and maybe this is unfair as a question can go but I need you all.

It is not too late for us to change our mind, if the panic did not overwhelm me Friday I may not sound this desperate. Friends, I ask you all: "Are we reaching for the big guns too soon??"

Waiting For A Miracle...and commanding one soon!!>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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