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Update Xeloda/Tykerb
So I still get frequent runs! But after 3 months, the tumor has shrunk in size by 30%. The thing I wonder about is that it appeared to be scar tissue for about a year. Could the whole thing be active tumor or part scar tissue? When it started growing again, the onc said it looked like an hour glass shape. I thought how strange that was. It almost seemed like there was just something alive in there that finally broke through and started growing outside the dead tissue. Has anyone ever had anything like this happen?
Should I push the onc to add Herceptin?
OH! And my MUGA went from 53% in Dec 2006 to 64% in July 2007! I even stopped taking the Lisinopril (ace inhibitor heart medication) in April! Maybe getting out of my stressful home situation in May helped my heart too! 
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Jan04: Bilateral Mastectomy at age 28
Initial DX: Left Breast: IDC 2cm, Grade 3, HER2+3, 0 Nodes +, ER/PR-. Right Breast: Extensive DCIS ER-/PR+; Stage 1-2a
Feb04-Apr04: 4 AC, dose dense
Aug 04: 4 Taxotere
Dec 05: Bone and Liver METS; Stage 4. Carboplatin/Taxol/Herceptin. DX with Li-Fraumeni Syndrome
Apr 06: NED, maintenance Herceptin
Apr 07: CA1503=14; masses in liver; Xeloda/Tykerb
Nov 07: NED, Tykerb maintenance
Sept 08: Liver mets again, on Tykerb/Xeloda again, CA=19 and 27
Nov 08: Progression, Tykerb/Gemzar, CA=25
Dec 08: Progression, Herceptin/Navelbine, CA=40, 57, and 130
Jan 09: Progression in bone, recession in liver, Herceptin/Carbo/Abraxane CA=135
June 09: CA27/29=24, chemo break
Sept 09: Progression, CA=24, waiting on clinical trial (4 weeks no treatment)
Nov 09: now have brain mets, trial "on hold", getting 14 WBR treatments starting 11/2/09
Dec 09: possible start on p53 trial
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