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Old 04-04-2007, 07:25 AM   #1
Shell
Senior Member
 
Join Date: Sep 2005
Location: Philadelphia
Posts: 301
scans are not good

Well, I've been on navelbine/avastin/herceptin since early December, and already it is time to change regines again.... My scans showed some nodules in the lung area getting smaller, but others getting larger, and some new ones. I knew it was getting time to change, as my shortness of breath is much worse.

I guess we're back to the drawing board. As you can see from my signature, i'm pretty heavily treated, so options are few. One thought is that i had a good response on the cytoxin/epirubicin/taxotere, and I can get 2 more treatments of that. Gemzar is an option, as is carboplatin, as is methotrexate - I don't know what else there is. My onc will also try to get tykerb for me -- how long is that taking people to get, and have you had payment issues with it?

I also have to figure out what resources there are for helping my family - our girls are 9 and 11 and I don't want to scare them, but I do want them to be prepared... They're off today through mid week next week for Easter, and the whole family will be together at the Jersey shore, so at least some fun times are ahead for this weekend when the cousins get together...

Regards,
__________________
Shell

init diag 3/17/03-stage IIIC
ER-/PR-/HER2+++
CET x4 neo-adjuvant
lump & SNB 8/03
CET x2
radiation and herceptin/navelbine 11-03-1/04
1st reoccur to lymph nodes 8/04
complete axillary dissection 12/04
herceptin/taxotere til progression (lungs) 3/05
xeloda w/out lapatinib trial 6/05
lapatinib/tykerb added 4/06
ended trial 8/06 due to progression
doxil / avastin 11/06-12/06 - wasn't working
navelbine/herceptin/avastin 12/06/3/07 - progression
gemzar/carboplatin/tykerb 4/07
mri shows extensive mets to bone in pelvic area 6/07
switched to abraxane (3 on/1 off) + tykerb 6/07
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