Now Dx with brain mets Need Input
Dx with IDC 1 year ago with met to liver & pelvis, 6 months taxol, carboplatinum, and herceptin weekly, zometa monthly, Pet scans had been clear , every thing gone, tumour markers at 13 last week.even had the brain Pet scanned in October, now MRI on Friday shows multiple lesions in the brain. Will not know sizes total number till monday. Mri shows no edema, pretty much no symptoms. The original cancer was ER/PR neg and Her2 positive. I am 39 and very active and work as a nurse and take care of special needs Kids. I know my faith in God and my family will help get me thru this new hurdle. But I need input on Tykerb do you only take it with xeloda and can you stay on herceptin. What about WBR, Gamma knife, IMRT. I need to be functional to work, and keep "my brains" but I wnat it to be gone and yet, be able to save"some" radiation exposure for another day! Cause I am going to be around for a long time!! My 6 year old needs his momma!!!!!!!!!!!!!!!!!!!!!!! I take coq10, flax, fish, fiber, vitamin, juice plus, any other suggestions!!! I go Tommorow morning to meet with Rad doc, Med onc is putting me on steroids. Thank You Darita
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dx 1/06 IDC 2cm 38 at dx
2/06 L mast nodes 3/9+ SNB neg ER-/Pr - her2 + Stg 4 liver/pelvis
3/06-9/06Taxol/Carbo/zometa/Herceptin
3/07 6 brain mets WBR down to c-2
4/07 osteonecrosis jaw
1/08 mri new 9mm lesion right lower side
2/08 gamma knife 1 lesion 11/08 regamma
10/09 latent rad necrosis to brain met,
1/20/10 crani: lesion necrosis w active cells continue her add tykerb
1/11 NED just Ingrown toenail! YEAH GOD
8/11 Tykerb, herceptin weekly, elevated her2 levels, negative scans
oct -march 11 new neuro deficits lower legs
3/12 2 spinal metsTykerb, Herceptin
04/12 4050cGY rads T 2-4 & T7-9
5/12 Brain,cervical lumbar clear/thoracic slight decrease
10/12 t 2-4 shrunk t-9 grew start Xeloda, 02/13 stop xeloda,5/13 on metformin, decadron, Tykerb, iv and IT herceptin 5/30/13 total #11 #2 of 80mg dose weekly.
9/13 100mg of IT her, IV hern, 750 mg tykerb, 3mg dec.
last Mri T--3 SHRUNK t7-9 shrunk no edema. Left shift in CBC bone marrow BX negative.
10/13 Ct has shown Double left ureters with stones/cysts in them, after 3 births and lots and U/S iit takes cancer to figure out you have 2 smaller ureters going into 1 kidney!
12/13 Mri brain no new lesions, cervical and lumbar arthritis.
Tspine lesion at T3 stable, T 7-9 GROWTH lots of pain
1/29/14 HIHO HIHO its off to Neuro surgery I go
Life is Good when you wake up in the morning and take a breath and know that God has given me another day.
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