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No exams in 12 months, I know why now.
For the ones that followed my posts about how upset I have been with this onc that will *not* exam me at all. No hands on...I mean never! I've been with her 12 months now & can't get her to check my axilla's, mastectomy scar/area, lymph nodes on either side, superclavical area, nodes in neck...nothing! (Remember I am a stage III'er, positive nodes, her2/neu 3+++ & NO rads.)
I just got ALL my records including "progress notes". Got these via the HMO. They had asked her WHY she does NOT exam me? She told them since I have under-developed ribs on the Rt. mastectomy side she feels its a much more comperhensive to go by the scans. (Like the side I have the under-developed ribs is an excuse NOT to check *any* part of my body.) Give me a break! I've been seeing doctors for YEARS. Regular doc's, GYN's, Orthopedic's, Neuro, Pulmonary...they ALL have examied me through my life with NO problems at all. Those couple under-developed ribs on the Rt side doesn't affect or change anything! Everything else is very normal. Ridiculous! My surgeon never has a problem checking me out...even the RIGHT side. He's the one that found the seroma on that side with no problems. So I will never be examied I guess and thats alright with them. (Sorry, mainly venting) Just got these notes today.
Chelee
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DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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