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Old 01-02-2007, 08:00 PM   #1
Sandy H
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Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
Tykerb/Xeloda update!

I wanted to update everyone on how it is working on my skin mets. I can honestly say my skin mets appear to be all gone. No evidence of anything going on in the chest area. I am so happy with the results. It is a great way for me to start out the new year! Also I am in Destin, Florida and am loving it! I hope this shows everyone how good my quality of life is almost 6 years with IBC. We spent 4 days driving down from Maine! I am experiencing some numbness in my hands but no cracks or peeling. I had a few at first but I use lots of foot lotion as it seems to work better then any hand lotion I have tried. I do get tired at the end of the second week of the Xeloda and have almost no appetite but that is about it. For the most part it is an easy treatment just have to plan a schedule and make sure you take it on time etc. I hope this will encourage others to give it a try if their oncologist agrees to it. Wishing you all dealing with skin mets to find the right treatment as each one of us is so different. Praying for a healthy 2007 for each one on this board. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!




I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
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