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Old 06-13-2007, 06:19 PM   #1
Mary Jo
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Sending Out Hugs and Prayers To Sheila

Sending out hugs and prayers to you for tomorrow Sheila. My prayers cover you and if my arms could hug you they would. You'll have to settle for a cyber hug.

Consider yourself hugged,

Mary Jo
Romans 8:28
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-13-2007, 06:22 PM   #2
Mary Anne in TX
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And hugged again.....

ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 06-13-2007, 06:27 PM   #3
Sheila
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Thank you both....I am ready for the fight. Just took my Dex...5 of them so I guess now I'll be up cleaning all night. All of the strength from this board will get me through this!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 06-13-2007, 06:42 PM   #4
Bev
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Sheila, Best wishes for you. Bev
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Old 06-13-2007, 06:52 PM   #5
Christine
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Shelia,

Joe and I wish you the best. We know that you are a fighter.

Hugs
Christine
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1990, July DX 1.1cm er-, pr-
Lumpectomy, 5U4, radiation
1999, June mets to chest and brain
HER2 3+++, er- pr-
AC, Taxol, Herceptin, Gamma Knife (3 treatments) WBR
NED July 2001
December 2001 - Founded HER2 Support Group
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Old 06-13-2007, 07:19 PM   #6
Carolyns
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Shelia,

Please add me to the list of well wishers. God bless and extra prayers headed your way.

Love, Hope, and Peace,

Carolyn
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Old 06-14-2007, 06:09 PM   #7
Ceesun
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Sheila, I'm with you, too girlfriend-go get em! xo Ceesun
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Old 06-15-2007, 02:32 AM   #8
Caroline UK
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Smile Another hug to add to your collection

Sheila, I'm thinking of you, wondering how you got on yesterday, and hoping you're feeling at least relieved that the waiting part is over.

Someone once said to me, after one of the chemo cycles, "Just think, you'll never have to have that particular one ever again". It did make me feel that yes, I am strong and proud to have achieved that goal. It's all one step at a time, isn't it.

I can't remember from your signature if you had Taxol before, or if this is the first time. I had taxotere, and if you need any help with particular side effects please feel free to send me a private message - I'm happy to pass on what worked for me in managing them. Hope this doesn't sound too resigned or gloomy - lots of people do brilliantly on the taxol family of drugs, after all, and have very few or minimal problems on them.
Love to you
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Caroline
Diag. March 10th 2006, aged 46.
Invasive ductal carcinoma, 2cm + multifocal. Stage 2, Grade 3
HER2+++, ER+/PR+
Right mast. May 2006. 6 of 20 nodes positive
FEC x 4, taxotere x 4; port implanted after 6 cycles
Rads x 25
1 year of Herceptin ended Nov 07.
Arimidex 5 years

Considering reconstruction, maybe soon...
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Old 06-15-2007, 04:33 AM   #9
Sheila
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Well Yesterday was a long day, but went pretty well.....I took 5 4mg tabs of Dexamethasone the night before, and 5 yesterday morning....I expected to be up all night, but slept like a baby...maybe just too worn out to let the Dex overide me. I spent 11 hours yesterday between the travel and the infusions....both seem to go well, they gave me Pepcid IV, Benedryl 50mg IV....(WHOA, now I'm tired) then started the Taxol (weekly x3) . When the taxol was done, time for the bathroom trip, so before I was hooked up to the Avastin, I made a dash...my luck, the IV tubing plugged and had to be restarted. Oh well, the Avastin IV (every other week) went well, another 1 1/2 hours then finally sent home with compazine for nausea. I slept most of the way hone, had some fruit and a light dinner at 5pm and then just layed around....that Benedryl knocked me for a loop. I never had any nausea, and today just feel kind of whacked out like I slept too much. My local Relay for Life is tonight, and I've always been a big part of it...don't know if I'll go or not. Tomorrow my Grandaughter gets baptised..thats a must. Thank you all for all the love caring and support...it means the world to me....

1 down...???? to go!
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 06-15-2007, 08:17 AM   #10
RobinP
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THANKS FOR THE UPDATE, PRAYING 4u!
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2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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