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03-01-2007, 05:35 PM
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#1
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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A bit crispy, but the radiation is done!
Wow, how excited I was to finish up my radiation today! It was simple and good, but just am so pleased to have it done. I got crispy is some places but have good stuff to put on it. I'm just so glad that they can raise our odds with the radiation. It felt like I was really doing something to fight this disease each day. I had such sweet care and will miss them. Now four more months of Herceptin and then ? whatever is next! I'm so glad you guys visit the board regularly. It just makes such a difference. ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-01-2007, 06:05 PM
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#2
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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You are all so brave about it all.
Crusty sunburn is bad enough and that's without everything else you go through.
I hope it is not too sore.
RB
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03-01-2007, 06:05 PM
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#3
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Senior Member
Join Date: Jan 2007
Posts: 72
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Congrats, Mary Anne!
__________________
12/01/2006 Initial Dx via stereotactic biopsy - DCIS, grade 3
12/27/2006 Lumpectomy w/ SNB: 2 foci of IDC (largest .3 cm, Grade 2, Notthingham score 6) amid large area of DCIS: No clear margins on the DCIS; re-excision recommended
ER+(55%)/PR+(60+)/HER2+ (2.8+ via IHC?)
01/23/2007 Re-excision Lumpectomy: No clear margins on the DCIS; mastectomy recommended
03/02/2007 Bilateral mastectomy w/ expander implant insertion
03/19/2007 Emergency surgery to fix broken blood vessel in left breast
03/30/2007 Met w/ oncologist; oncologist checking on HER2 status with pathologist and doing some consulting on my case - no treatments for now!
05/02/2007 Next appointment w/ oncologist
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03-01-2007, 06:18 PM
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#4
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Way to go Mary Anne! You will be surprised how quickly you heal up. My rad people gave me "Aquaphor" ointment last time, it was amazing stuff.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-01-2007, 06:41 PM
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#5
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Senior Member
Join Date: Jul 2006
Location: Shingle Springs, CA - near Sacramento
Posts: 295
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HI Mary Ann,
Just had my 1 month check up after radiation. My skin is still a little red and the Dr. said it was actually warm to the touch, too. Doesn't bother me at all now, I was unaware of the redness and warmth. He also said to wait another 2 mos. for my mammogram even though the oncologist ordered it just to make sure everything is good and healed before we go squishing everything!
Hope healing happens as fast for you as it did for me.
Best to You,
Donna
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03-01-2007, 07:12 PM
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#6
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Mary Anne
Great news that the radiation hurdle is over...hope you will be feeling like a million in no time.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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03-01-2007, 07:18 PM
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#7
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Happy Graduation !
Hi Mary Anne,
Another step forward in the treatment process! Best of luck and Congratulations.
Regards,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-02-2007, 02:45 PM
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#8
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Senior Member
Join Date: Aug 2006
Location: Rowlett, TX
Posts: 138
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Congratulations! I finished up one day before you and am red and sore in only one place (under my arm), so I feel I came out pretty good. Good luck on healing and being able to put rads in the PAST!
Janet
__________________
Janet in Rowlett Texas
Dx July 2006 IDC 1.8cm, ER-/PR- HER2+ (FISH 7), KI67 High (60%) grade 3, TOPO II neg
Aug2006: lumpectomy, SNB (4 nodes neg), Stage 1
Jan 2007: Finished 6 cycles of TCH (Taxotere, Carboplatin, Her ceptin). Then Herceptin every 3 weeks.
Feb 2007: Completed Radiation
May 2007: Stopped Herceptin due to low LVEF (49%)
July 2007: LVEF now 44% -- starting Coreg
May 2008: Heart NORMAL! Yippee.
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03-06-2007, 02:54 PM
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#9
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Senior Member
Join Date: Jan 2007
Posts: 27
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I had my last radiation treatment today!They were wonderful to me and will kinda miss them? For my burns they gave me Aquaphor( over the counter), Biafine (RX only) and a solution called Domeboro. They all worked pretty good until someone told me to put Aloe Vera from the plant on the burns. Take a stem from the plant, keep it in the refrigerator, slice thin layers and apply to the skin. It feels so wonderful, I could see the difference in my skin within the hour! CarolB
__________________
 Carol H., Florida
Right Breast 11-28-06
Lumpectomy
Infiltrating Carcinoma
Stage 1
Grade 11
1.5 cm
Sentinel Lymph Node Neg.
ER-
PR-
Her2+
Fish 2.5 Amplied
KI-67 20%
Radiation= 6 weeks
Refused Chemo & Herceptin
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03-06-2007, 03:45 PM
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#10
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Carol, while it's true that aloe vera is very healing, my radition nurse recommended that I get some bottled gel (more sanitary) from the local health store, keep it in the fridge and apply as needed...
The fresh leaves could have bacteria on them, and if you have any raw or weepy places the bacteria could be problematic.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-06-2007, 04:10 PM
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#11
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Senior Member
Join Date: Jan 2007
Posts: 27
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Thanks for that imformation. I did buy some aloe vera from the drug store but it had all kinds of other ingredients including alcohol which is really bad to use. I'm going to the health food store right away. I did wash the plant really good. CarolH
__________________
Carol H., Florida
Right Breast 11-28-06
Lumpectomy
Infiltrating Carcinoma
Stage 1
Grade 11
1.5 cm
Sentinel Lymph Node Neg.
ER-
PR-
Her2+
Fish 2.5 Amplied
KI-67 20%
Radiation= 6 weeks
Refused Chemo & Herceptin
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03-06-2007, 04:44 PM
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#12
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Update - I'm just healing away! My back itches a bit where it exited, but it's more irritating than anything cause I can't reach it to scratch!
It's sort of like growing new hair...this growing new skin! Kinda nice! I'm amazed at how quickly it is peeling and growing back. ma 
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-06-2007, 09:15 PM
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#13
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Senior Member
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
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Carol H, I didn't mean to sound critical! Sorry if it came across that way. I know what you mean about trying to find pure aloe gel, as most of them contain some type of preservative and then thickening agents, fragrances, etc. I did find a good one called "Lily of the Desert". It's a bit thin, but it worked just fine. Good luck.
<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.
Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
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03-07-2007, 05:26 AM
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#14
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Senior Member
Join Date: Jan 2007
Posts: 27
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Hi Lolly, I didn't talk it as you being critical. You gave me some important information that we all can use. That's what this wonderful site is all about, sharing info with the bravest group of people I have ever known. CarolH
__________________
Carol H., Florida
Right Breast 11-28-06
Lumpectomy
Infiltrating Carcinoma
Stage 1
Grade 11
1.5 cm
Sentinel Lymph Node Neg.
ER-
PR-
Her2+
Fish 2.5 Amplied
KI-67 20%
Radiation= 6 weeks
Refused Chemo & Herceptin
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