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Old 12-04-2006, 07:47 PM   #1
Heart Sutra
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'Twas the night before surgery (updated 12-6-06)

...and we're scared.

Not of surgery, but of the overall prognosis of HER2 positive survival rates.

We can find statistics that are very poor, and some that aren't so bad, but great statistics...?

It's only been about 2 months since diagnosis, we feel battered a lot of the time, and we forget it all a lot of the time too. But remembering it over and over throughout the day is so hard.

It is a scary diagnosis, HER2 positive cancer.

It is our desire for things to be different than they are that is causing all this emotional pain. That much is obvious. How could it be otherwise?
sometimes it seems better to not have these great big brains that think so fast, conclude so much, infer all possibilities, tell such scary tales...
Sometimes it is easy to envy our dog, lost in sleep for the 10th time today.

We'll let you all know how surgery went. Thanks for all of your support.

---Kevin and Sue---
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Old 12-04-2006, 08:30 PM   #2
Bev
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Try not to worry. Turn all your attention to recuperating from surgery. There will be new study results from ASCO this month. I'm sure it will be more positive news. This roller coaster we're on has good days too. Best of luck with the surgery. BB
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Old 12-04-2006, 09:51 PM   #3
tousled1
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Kevin & Sue,

Try not to worry too much - I know it's hard not to. As for statistics for HER2 breast cancer you can throw out all the stats that you've seen. With Herceptin the stats are ever changing. Just look at the women on this board and what they have been through and are still here and NED. Your main concern right now should be concentrating on recovery from surgery. I'm sure the surgery will go as expected. Just make sure that your wife starts moving the arms immediately. I'll keep you in my prayers.
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Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 12-05-2006, 03:38 AM   #4
tricia keegan
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Smile Positive thoughts speeding your way!!

Kevin and Sue

Hi and just want to wish you a sucessful surgery Sue and
a quick recovery.
Her2 positive cancer IS scary for me too but we have to
remember most of the info we read is totally out of date and
pre herceptin so just take one thing at a time and the rest
will wait till tomorrow!
Good luck
Tricia
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Old 12-05-2006, 05:55 AM   #5
newgg
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Big brains that

think so fast, conclude so much ......so very thankful for them!! All those "big Brains" will bring new info to ASCO this month and maybe there will be another cheering section for all the new meds aimed at HER2. Yeah !! As many have stated...we are rewriting the HER2 stats every day!! Just get strong after surgery and do the range of motion for the arms. Will need those arms for hugging all the loved ones for years and years!
Hugs, Bonnie
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Old 12-05-2006, 07:34 AM   #6
lightsteve
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Kevin and Sue:

We're with you all the way, you are in our thoughts and prayers.

Steve
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Sarah's history:
DX Sept 03 Stage 2B Grade 3
BRCA 1 positive
RT Mastectomy
4 cm lobular 1+node ER-/PR- Her2+
chemo 2004:
4 cycles AC
4 cycles Taxol
herceptin 2004-2005
june 06 stage IV: lung, bones
weekly taxol
1/3wk herceptin
Oct/November 06: new primary left breast
ductal 4cm+
mastectomy
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