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Old 09-23-2006, 10:29 AM   #1
Donna
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Hearing Loss Anyone?

Hi All, and wishing you a great day!

I was wondering if anyone else had inner ear and hearing problems related to their chemotherapy regimen? I just finished my four dose dense treatments with Adriamycin/Cytoxan and during the last two, my hearing has changed dramatically. I am not sure, but headaches may be related???

Ototoxicity is not a side effect listed for these meds - there are other chemos where this would be a common side effect.

Anyone else experience this and if so, what can be done for it if anything?

Thanks so much. This group and all the information I garner from it is wonderful.

Donna Milliron
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Old 09-23-2006, 04:27 PM   #2
sadie
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What's that? Hearing loss? eh?
lol
Oh boy, do I have the hearing loss! I always did have Tinnitus; but during my AC regimen, my hearing starting getting worse. Ringing in the ears became louder and louder. Got worse during Herceptin/Taxol regimen. Once I finished the Taxol, it stopped getting worse, but never got better.
Eye-sight is really bad too. I notice that it's worse the week after having my Herceptin-only treatment. It slowly improves, then it's time for another treatment.
Hope you have better luck than I have had. Of course, compared to the alternative......
A couple of months ago, I remember another thread having to do with hearing loss.
Maybe people just wrote about it in the Herceptin side-effects thread.
Check it out, because there were alot of responses about the hearing loss.
Take care.
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Old 09-23-2006, 08:07 PM   #3
tousled1
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And I thought I was the only one with eyesight and hearing problems! I thought it was just age related! Mine too is getting worse since starting Herceptin.
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Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 09-24-2006, 09:34 AM   #4
Joy
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me too

Hi Donna, i swore that my hearing decreased during carbo/taxol even though i found inconsistent information to support my experience. I have been off of those for about 2 months and i'm sure it is better. I really didn't want my mom to be right about all those concerts catching up to me.

I hope your hearing issues resolve swiftly.
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dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
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Old 09-25-2006, 06:50 AM   #5
Her2nSue
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hearing loss

I haven't been on in a while, but this sure caught my eye. I'm not alone in having to sound like an old woman with "can you repeat that, I couldn't hear you". I just thought either I'm not connecting the dots when someone speaks to me or any background noise drowns out the conversation. But when it continues at home and between me and my daughter, I know theres a problem. Currently still doing herceptin since Feb. and still have a couple of more months to go. I hope my hearing improves after this is all done with.
Good luck to you all, too.
Sue
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Old 09-25-2006, 08:22 PM   #6
Bev
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After AC, during T & H my ears blocked up with some ringing. That has cleared up 7 mos down the road. My vision has been worsening. I hope that will level off as well. BB
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