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Old 10-22-2005, 07:26 PM   #1
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herceptin indefinitely for early stage?

As a stage 3 patient, I feel very fortunate that I was able to get herceptin for one year after primary treatment. As the year comes to a close, however, I am worried about what I should/can do next. Are there any women here receiving long-term herceptin (>1yr or indefinitely) for early stage bc? Any comments/feedback would be appreciated. Thanks.
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Old 10-22-2005, 08:12 PM   #2
athena453
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Great question, I am in a similar situation. I asked my onc about staying on herceptin for more than a year; pending HERA trial results. She felt that it ulimately would have been more beneficial to compare one year of herceptin folling initial dx with a shorter time frame...six months, for example.
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Old 10-22-2005, 10:07 PM   #3
Julie2
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I am in the similar situation and really want to stay atleast one more year on Herceptin. My one year will be over in march 2005. Are there anybody getting more than one year? I know Barbara is getting for the 2nd year.

Julie
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Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 10-23-2005, 06:05 AM   #4
Kim in DC
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continuing herceptin

My onc and I decided to continue untill the Hera trial results are announced next May. She is very conservative and I am surprised she even suggested it. I was stage III and I started Herceptin 8/04 in combination with chemo.

Kim
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8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
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Old 10-23-2005, 10:58 AM   #5
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Ladies,
I'am early stage(1c), and will be doing two yrs. I was surprised my onc. prescribed this, but was grateful too. When the two yrs. is up it will depend on the European studies, but he did mention there is a possibility I could be on it indefinately. I'am going to U of M in Michigan. Hope this helps.
Michelle
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Old 10-23-2005, 02:13 PM   #6
Unregistered Michleu
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Julie2
Why did they give you xeloda if you are stage 3? I am stage 3 also and did not get xeloda. I thought it was for stage 4.
And also i'm another stage 3 gal that is wondering if i should try to push for another year of Herceptin. I got one year with a study
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Old 12-28-2005, 09:22 AM   #7
Sheryl
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Herceptin treatment

I was surprised to read that a stage 1c person was given Herceptin. The latest study in Helsinki, Finland compared one year of Herceptin with 9 wks. of Herceptin & after three years follow-up, there seemed to be little difference in the outcome. Is anyone receiving less than l yr.of Herceptin at this time? Sheryl
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