Vaccine Trial

schoolteacher · 01-15-2009, 01:45 PM

Will everyone say a pray for me? I am trying to get in a vaccine trial, and all my medical records have been received, and the doctors are suppose to look over them tomorrow.

Thanks,
Amelia

Yes, I Believe.

Kim in DC · 01-15-2009, 03:17 PM

Amelia,
I am praying for you! I think vaccines are the way of the future.

Kim

schoolteacher · 01-15-2009, 03:27 PM

Thank you Kim, and God Bless You. I am so anxious about this I can hardly stand it. I am happy, but I know if I find out tomorrow they will not accept me I will be disappointed.

If I am rejected, then I will apply to another trial.

Amelia

Faith in Him · 01-15-2009, 06:21 PM

Just said a prayer that the doors to the trial will fly open for you. Let us know how you make out.

Tonya

vickie h · 01-15-2009, 08:37 PM

Amelia, Prayers coming your way. I am sending all my energy to get you into that study. I, too, think vaccines will become a wave of the future. Much love, Vickie

ElaineM · 01-15-2009, 09:00 PM

I just said a prayer for you. I would cross my fingers too, but if I did I couldn't type. Come and sit awhile by the campfire. Someone is serving some delicious kale soup tonight.

schoolteacher · 01-16-2009, 05:27 AM

Tonya, Vickie, and Elaine,

Thank you so much. I have just gotten to school, and this starts my door in a very positive way.

God Bless all of you. I hope I know something by this afternoon or Monday.

I love the campfire. All of you will never know how much this board has meant to me in the last year.

At this time last year, I was so frightened and afraid, but God helped me to find all of you!

Amelia

Lori R · 01-16-2009, 06:27 AM

Amelia,

Another set of last minute prayers coming your way!!!

Of course I certainly agree with your last post about how supportive the everyone on the board is.

But you really provided a powerful message that I will tuck in my basket of positivive thought.

God did direct us to this site. So, in many subtle ways God is with us and takes care of us. Keep that in mind as await for your results. If they are not what you had hoped, there is another path that has been chosen for you and what you need for the journey will be provided along the way. I guess knowing that is what is called Faith.

Wow....didn't mean to wax philisophically so early in the morning.

Thinking of you!!! Lori

schoolteacher · 01-16-2009, 06:31 AM

Lori,

Thank you for your prayers.

Amelia

WomanofSteel · 01-16-2009, 06:59 AM

Keeping you in my prayers also.

Missyw · 01-16-2009, 08:16 AM

Hi Amelia,

My prayers are with you. I participated in the U of Washington vaccine trial Jan. 07 - July 07. I was accepted with like 5 days remaining in my "window of opportunity". I took it as a sign and got on that plane to Seattle. My experience was great each and every time I flew out. (Seven times all together.) I am still NED.... so far so good. If you qualify and you think I can help with any information, just let me know. I realize each trial is unique, but maybe just a hand to hold would help. Let me know if there is anything you need.

Missy

schoolteacher · 01-16-2009, 08:57 AM

Missy,

Thank you. I will be getting in touch with you about how you did your airfare and your hotel room. I am so anxious today I can hardly sit still.

I have a friend and she will help me with making the arrangements.

Missy, like me you have not posted all the things that have happened during your journey. I was wondering where your BC was besides your breast? Mine was in my L4 of my spine.

Amelia

Missyw · 01-16-2009, 09:55 AM

Hi Amelia,

It has been quite a journey. I was diagnosed in Jan. of 06. I arrived at Stage IV with liver mets which probably should have been diagnosed at my original staging screenings (Jan. 06); but the mets weren't detected until May. So far no other sites. I have been NED since Aug. of 06. My trial required NED or stable bone mets. If you are going to Seattle I can probably be somewhat helpful. If you are going to another location I could give you the general info. about travel and hotel help, but i may not have the exact contact info. In any event, just let me know if you think i can help. I would be happpy to try.

Missy

Shobha · 01-16-2009, 12:40 PM

Adding my prayers that you get selected for this trial. God bless.

schoolteacher · 01-16-2009, 12:48 PM

Thank you Missy and Shobha,

I got an e-mail at lunch that one doctor has signed off agreeing to let me in the trial, and the medical information was placed on the other doctor's desk yesterday afternoon.

So, I am waiting for that doctor to review and sign off. Please let her/him come to the office today. I am so anxious about this.

Amelia

Missyw · 01-16-2009, 12:54 PM

Hi Amelia,

Will you be pressed for time to get to the vaccine location once you get approval? If so, start researching airfares (provided you need to fly) right now. Continental and Southwest both have programs that allow you a free flight for medical treatment. Although this time of year with fares prretty low, you may want to save the free ones for later. Both programs include plently of hoops to jump through and some red tape, best to get things ready "just in case". Please let me know if you are trying to get in to a program in Seattle. I can help with some hotel info.

Missy

MMM · 01-24-2009, 03:50 PM

Can someone tell me the prerequisites needed to qualify for trial?

SuThorn · 01-24-2009, 05:39 PM

I know that there are many different vaccine trials going on right now, but the following are the criteria for the peptide based vaccine trial that Amelia and I are doing at UW.

Stage IIIB or Stage IV, HER2+ and on maintenance Herceptin for less than 6 months. You must be NED or stable bone-only disease to be eligible.

Regards- Suzanne

schoolteacher · 01-16-2009, 01:18 PM

Missy,

Thank you for this information. I did not realize that I might be able to get a free flight.

Amelia

Missyw · 01-21-2009, 08:22 AM

Hi Amelia,
I found this contact information re: lodging help in Seattle. It has been two years since I traveled, but hopefully this information is still good. Good Luck!!

Missy

Leslie Rickard
Cancer Resource Call Center Coordinator
American Cancer Society, Great West Division,Inc.
2929 E Thomas Rd. Phoenix, AZ 85016
t)602.952.7545 fx)602.224.7476
Call Center 866.500.3272
leslie.rickard@cancer.org
If you or loved one needs help or information about cancer, please call 1-800-ACS-2345 or visit us online at www.cancer.org available to you 24 hours a day, 7 days a week.