I don't post much but I do read all the posts from everyone else. I did want to post my good news. I was diagnosed in 10/2003 with stage II. I am on the clinical trial with UCLA in CA. I was on the control arm, so I did not receive the Herceptin drug. My oncologist said at this late stage it probably would not be of any benefit. That a study was not done on someone who had chemo 1.5 years ago. He stated that if my cancer came back I would get Herceptin immediately. Long story short: I had been having hip pain since Oct 2005. It had gotten so bad that I can't sleep at night. I had xray, bone scan and last week a MRI. They all came back negative. My CA27.29 has been steadily going up. In August it was 32 and May it is 44.3. I have it drawn every three month. The Orthopedic guy I saw stated that even though my MRI is normal I may have mets elsewhere in my body because of my elevated markers. He has treated my for bursitis this afternoon with cortisone injections. I am just so happy not to have bone mets at this time. Thank you all for your help in researching everything there is on Herceptin and HER2neu. I can come to one site and know that the info is realiable.
We all like to wallow in good news...good news for even 1 of us is hope for the rest. Enjoy your great report...may it last forever!!!!!!
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"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."
Hugs & Blessings Sheila Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications) Core Biopsy 2/22/02 L. Mastectomy 2/25/2002 Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg 6/2003 Reconstruction W/ Tissue Expander, Silicone Implant 9/2003 Stage IV with Mets to Supraclavicular nodes 9/2003 Began Herceptin every 3 weeks 3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes 3/2007 Added back the Xeloda with Herceptin for continued mets to nodes 5/2007 Taken Off Xeloda, no longer working 6/14/07 Taxol/Herceptin/Avastin 3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee 5/29 2008 Back on Taxol w Herceptin q 2 weeks 4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve 5/2009 Begin Rx with Navelbine/Herceptin 11/09 Progression on Navelbine Fought for and started Tykerb/Herceptin...nodes are melting!!!!! 2/2010 Back to Avastin/Herceptin 5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate Pericardial Window Surgery to Drain Pericardial Effusion 7/2010 Back to walking a mile a day...YEAH!!!! 9/2010 Nodes are back with a vengence in neck Qualified for TDM-1 EAP 10/6/10 Begin my miracle drug, TDM-1 Mixed response, shrinking internal nodes, progression skin mets after 3 treatments 12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments 2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!! 7/5/11 begin Gemzar /Herceptin for node progression 2/8/2012 Gemzar stopped, Continue Herceptin 2/20/2012 Begin Tomo Radiation to Neck Nodes 2/21/2012 I CELEBRATE 10 YEARS 5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression 6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin