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11-19-2005, 03:24 PM
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#1
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Having IV in arm that had lymphnodes removed?
Hi Guys,
It's me again.( I am again so excited to have this web site) I was wondering if anyone has had experience with having their Herceptin tx given in their arm where lymphs. were removed. My chemo nurse has mentioned this to me a couple of times now and I'm not to sure what to think of this.
Thanks,
lexigirl
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11-19-2005, 03:32 PM
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#2
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Lexigirl
I was told NEVER NEVER NEVER any B/P or needles in my mastectomy side due to the lack of lymph nodes..no shots, no IV's nothing...as far as I know, this practice has not changed...they worry about infection due to lack of lymph nodes, and lymphadema from blood pressure cuffs...I was told that even a cut or bite that was not well taken care of could cause serious problems...why can't they use your unaffected side? If your veins are no good, I would look into getting a port to avoid the hassle.
Hope this helps.
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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11-19-2005, 03:35 PM
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#3
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Iv in masectomy arm
Sheila,
Everything I read as well said no bp, Iv's, cuts or any of the sort. I am curious because I am to have Herceptin for a year and my little left arm is pooping out. I was just curious if anyone else had heard or experienced this.
Thanks,
lexi
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11-19-2005, 04:33 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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portacath
Lexigirl,
You may want to look into getting a portacath, rather than having IV's. I was dx in Feb 05 and my surgeon strongly recommended portacath for chemo, even before we knew I would be having Herceptin. The portacath has made treatment much easier and I strongly recommend it.
Good luck, come here often. It has been a lifeline for me for both knowledge and support.
Sassy
________
HOW TO ROLL A JOINT
Last edited by sassy; 08-22-2011 at 08:34 AM..
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11-19-2005, 05:36 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Response to Sassy
I have been told I may want to have port placed. I am just so stinking scared of more surgery. I need to get tough!
Thanks, lexigirl
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11-19-2005, 05:44 PM
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#6
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Guest
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lexigir,
Absolutely not should you have Iv's on your affected side, or as others have BP'S, Bld. draws, etc.
Carol
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