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03-15-2007, 12:38 PM
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#1
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Senior Member
Join Date: Sep 2005
Location: Riverside, CA
Posts: 484
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Recovering from surgery....
Here I am 8 days post surgery to remove the lesion in my cerebellum. Yesterday I took my first trip out of the house, to have lunch with a friend at an outdoor cafe. The weather was lovely, and I had a great time.
I feel stronger and better everyday, walking and moving around feels good and I can feel the improvement.
I go in tomorrow morning for PT eval, I will do a short course of 6 weeks of PT. It certainly can't hurt and may help alot. There is a good chance my balance will just come back completely all on on it's own, but a little help will likely speed that along.
I really dreaded this surgery, but to my surprise it has not been the ordeal I had anticipated. At this point I am glad it is behind me and I can continue on my way.
I am anticipating the Tykerb, and hope that it will be of benefit to me, as I qualify for it, my brain lesion qualifies as a progression while on herceptin, so there should be no problems with insurance covering it for me. I am so hopeful that it may help prevent future lesions for me, in combination with the herceptin.
Thank you everyone for all your kind words and support. They have really meant the world to me at this time.
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03-15-2007, 12:59 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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It's great to hear such good news, Esther! Let us know how the tykerb goes. I fully expect to hear about your ski trips again next winter! You are in my thoughts and prayers. Hugs, Tricia
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03-15-2007, 01:06 PM
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#3
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Great to hear you're doing so well Esther. Here's hoping that Tykerb will be what you need. I'll keep you in my prayers.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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03-15-2007, 02:25 PM
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#4
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Hi Esther! I'm excited for you that your surgery went better than expected! And I'm believing with you that your balance is on it's way back soon! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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03-15-2007, 03:36 PM
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#5
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Senior Member
Join Date: Nov 2005
Location: New York
Posts: 90
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I am glad everything went well and you seem to be in great spirits!
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03-15-2007, 07:49 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Esther,
So happy to hear your fast progress! The P/T will be a great benefit and before
you know it you will be running about.
You have such a beautiful positive attitude. I am keeping you in my prayers.
hugs,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-16-2007, 01:37 PM
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#7
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Senior Member
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
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I am so happy ...
that your recovery is going well Esther.
I did not realize that you were having issues again but good to hear that it has been taken care of.
Praying for a speeding comeback for you so you can continue on with active life.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
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03-16-2007, 01:51 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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Hi Esther,
I am glad that your surgery went well and I hope that it won't be long before you feel comfortable skiing. The Decradon was the most difficult part of the recovery for me. I had some problems with balance, but that cleared up on its own without physical therapy.
Best wishes,
Barbara H.
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