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11-14-2006, 01:26 PM
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#1
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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/curious
Curiosity has struck! I was thinking of this the other day. Seeing as the statistics for us her2neu positive people isn't accurate anymore (now that herceptin is here for us) I just wondered how those of you were doing that were diagnosed with early stage (no mets determined by pet/ct scan) since your chemo/radiation/surgery is completed. This question is for those of you who were er/pr neg. her2neu positive.
I was a stage 2A or B - no mets determined by pet scan done a week and a half after diagnosis. Finished chemo 1 year ago this Nov. 30, 2006 (man, where did the time go?) and just recently finished herceptin (Oct. 11th, 2006 - received every 3 weeks for 1 full year) Only God knows what will be.................praying it's no recurrence AS we all do.
It's hard to follow any kind of statistics though because those you often see with recurrence had their original cancer diagnosis before herceptin was used.
So..........................er/pr neg. Her2neu positive. No mets at diagnosis AND received chemo and herceptin. How ya doin'?
God Bless all............................................... ..........Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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11-14-2006, 04:37 PM
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#2
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Senior Member
Join Date: Dec 2005
Location: Michigan
Posts: 230
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Hi Mary Jo,
Thanksgiving 2004 is when I discovered my lump I am finding myself more anxious about it but should be excited. Anyway, I am NED.
Mary
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11-14-2006, 05:32 PM
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#3
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I was diagnosed August 2004 at Stage 2A and I am still ok. I am ER+ but PR neg.
Becky
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11-14-2006, 05:39 PM
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#4
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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I was diagnosed Stage III in October 2005 and am still Stage III -- no mets.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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11-14-2006, 06:17 PM
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#5
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Member
Join Date: Sep 2005
Posts: 9
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I was Dx Stage I ER/PR-, HER2+++ in Nov 2004. I'm doing great! New job, go on vacations a lot more. Looking forward to first grandchild. For now, at least, life is good. Berta
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11-14-2006, 08:29 PM
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#6
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Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
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stage 3b all nodes pos 2003---no recurrence!
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11-16-2006, 04:34 AM
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#7
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Senior Member
Join Date: Oct 2005
Posts: 62
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I was diagnosed 3/21/05. 4.5 cm tumor and 2+ nodes. I finished my year of Herceptin in 4/06 and so far so good. no recurrence.
Laurie
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11-16-2006, 04:56 AM
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#8
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Senior Member
Join Date: Nov 2005
Location: Hilton Head Island, SC
Posts: 279
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let me add
I was diagnosed as 3a on July of 2005... still here, still NED. Cautiously optomistic I suppose!
__________________
Kim
Diagnosed 7/05
Stage 3a er+(45%) pr+(68%) Her2+ (40%)
3.8 cm + .8cm multi focal - pleomorphic lobular tumors
high grade DCIS
7/20 nodes
BRCA 2 positive as of 5/07
surgeries: double mastectomy, hysterectomy (LAVH)
A/C,Herceptin for 1 year completed 11/06
femara
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11-16-2006, 11:42 AM
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#9
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Senior Member
Join Date: Nov 2006
Posts: 35
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Diagnosed 4/2002, still going fine
I had a lumpectomy, ACx4, Taxolx4, 37 rads for a 1.8 tumor, 1 node +ve. ER/PR negative, Her2 positive, all "poor prognosis" on my path report for lymphatic invasion, tumor necrosis, high s-phase, etc, etc, etc. Chose not to do herceptin - I'm now 52, feeling fit and healthy, enjoying every day.
Marianne
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11-16-2006, 03:25 PM
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#10
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Senior Member
Join Date: Oct 2005
Location: Minneapolis, MN
Posts: 189
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I really love this thread marejo, thanks. I was dx 3/4/05, 1.7 cm, grade 3, stage 1. I was er+/pr- though. Had AC, Taxol/Herceptin, 1 year herceptin, bi-masectomy and hysterectomy. I do have the advantage of Arimidex. At 20 months all is well, and looking forward to hitting that 2 year mark!
__________________
Cheryl
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11-18-2006, 07:21 AM
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#11
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Member
Join Date: Mar 2006
Posts: 23
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Another happy story, keeping fingers crossed
I was diagnosed in July 2002, tiny tumor (they almost didn't find it) but 10 of 16 lymph nodes were positive. I had a lumpectomy, 3 rounds of taxotere and epirubicin administered on successive days, 6 weeks of daily radiation, 3 more rounds of taxotere and epirubucin (the chemo sandwich that they do at the university hospital where I was treated here in Germany), and then I got into the one-year arm of the HERA trial of adjuvant Herceptin and got it every three weeks from January 2003 to January 2004. And I've been fine ever since. Thank goodness, thank Genentech...
Tessa
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