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06-27-2007, 01:13 PM
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#1
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Senior Member
Join Date: Sep 2006
Location: Bartonville, IL
Posts: 70
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Hot flashes
I have really been bothered by hot falshes. I have tried decreasing caffiene, exercising, Effexor XR 75 mg, Clonadine, Lexapo10 mg, and now Paxil CR 25 mg. Only thing that I have noticed is a few extra pounds! I have as many as 20 a day. They are the sweaty, nauseating, anxiety kind of hot flashes. Has anyone tried anything they think really works? I know it is probably minor in the big pictures, but it is disrupting my daily activities.
__________________
Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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06-27-2007, 02:19 PM
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#2
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi,
I experienced similar hot flashes while going through chemo (like every 20 minutes and I'm NOT kidding). Was really hell. I'd often say that part was wayyyyy worse than the actual chemo. About 2 months after chemo ended hot flashes also decreased CONSIDERABLY and eventually stopped all together. Just recently they have kicked in again. Not nearly as bad or as often but a "pain" all the same. However, I'm the type of personality that I'll just live with them and let them run their course. Eventually they will stop. I don't like take any "drugs" of any kind so feel better just dealing with them naturally.
Hope they let up soon.
A "chilly" hug I send. 
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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06-28-2007, 04:43 AM
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#3
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Senior Member
Join Date: Sep 2005
Posts: 202
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Hot flashes.... I have tried alot of the things you have, The Lexapro and Paxil, ran it's course and then stopped working, I then went to Melatonin off the shelf, again worked for a bit then stopped. My doctor has me on Rosarem and it worked for a while, then has stopped, but I am still on it an added Nortriptalyne (SP) and am sleeping great. Have you tried Ativan for the anxiety, I liked those when going through treatment. Works in about 45 minutes and doesn't need to build up in your system?
A friend gave me a "chillo" you can get them off the internet. It works pretty good. It's a pillow that holds water and you put it under your pillow and when you get up from sweating you put your head on it and it will cool you down. I have two fans running on me, so for right now, with the meds and the above, I am finally sleeping through the night. Day time, I still have them and dress in layers. Good luck, Good thread, I'd like to see what others are doing?
I went through it twice, once with chemo, then started again, had LAVH and the HF's are still going strong 1.5 yrs later. YIKES, will it ever end?
__________________
Take care, k
DX: 10/29/03-Stage IIB, 3/12 nodes +, er/pr-,
Grade 3
MRM: 11/07/03
TX: TCH-BRICG Study-6 tx's; 12/15/03
Herceptin; til 12/14/04
Rads: 30 days
BRCA neg
S-Gap: 12/15/04
Oct 05: LAVH
NED
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06-28-2007, 09:08 AM
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#4
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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I don't have any good advice for the hot flashes...I have them frequently. I am taking arimidex and that is a side effect. When I have one I try to feel thankful that the medication is working!!! For me, the worst ones are at night and it has been really disruptive for sleeping. I have tried prescription sleep meds to no avail. Hot and cold hugs to you!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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06-28-2007, 09:18 AM
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#5
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Senior Member
Join Date: Oct 2005
Posts: 215
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Hot flashed
This is second go around with hot flashes for me. First time going thru menapause, that was a bugger. Now with Arimidex. Not too bad, but a little uncomfortable. I am like mary Jo though, I don't take anything for them. I find it easier to just work thru them. Even before Cancer I never did like to take any pills or medicine. Of course at that time I was as healthy as a horse, or so I thought. I feel that if this is all I have to put up with I can handle it.Blessings and Hugs to you all,Jeanette
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06-28-2007, 04:52 PM
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#6
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Senior Member
Join Date: Jun 2007
Location: Alaska/arizona
Posts: 26
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Spontanous Combustion
Any one who doesn't believe in it never had the every 20 minutes chemo induced hot flashes. Full fans at night, window open in Alaska (about 49 degrees outside) I'm freezing out my hubby.
Anybody know if it's ok to take Black Cohash on TCH?
__________________
 Vicki
dia 4/07 stage 3 grade2
4.3cm w/enlarge lymph nodes;
er/pr-,HER2+++;Ki67 55%
TCH X3 every 3wks till 8/7/07,
Herceptin till 4/4/08
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06-30-2007, 04:45 PM
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#7
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Member
Join Date: Dec 2005
Posts: 20
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I can relate to the anxiety and hot flashes, but my anxiety and
mood swings are the worst. I don't tolerate the antidepressants well,
too sedating or nauseating.
Check out www.susanlovemd.com search menopause, lots of info.
www.healthforums.com lots of ladies there who are having
disabling symptoms without breast cancer, but may be helpful.
Can anyone tell me what's the latest on black cohosh
and breast cancer? Are the oncos still saying no, seems
Dr. Love is taking RemiFemin. My GP prescribed and
sold me black cohosh, then again I'm stage I.V. HER 2, ER& PR neg.,
lung mets treated three times since 2002, currently on Herceptin weekly.
Maybe my GP is more concerned with quality of life issues than my onco.
Any thoughts on Black Cohosh? It seems to stop my hot flashes,
but I still toss and turn without taking another med, although family doc says it will help other symptoms.
Susan M(PA) |
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07-01-2007, 08:21 AM
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#8
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Senior Member
Join Date: Sep 2006
Location: Bartonville, IL
Posts: 70
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Has anyone tried acupuncture for hot flashes?
__________________
Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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