HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 07-17-2007, 07:30 AM   #1
Robbin
Member
 
Join Date: Jul 2007
Posts: 6
Smile her2+

Hello,

I am new and wanted to say Hi for one and to ask a question. I am er,pr and her2+. I had a lumpectomy, 4 a/c and have had 2 taxol with 2 more taxol to go. I have 6 wks rads to go also. I had two treatments of herceptin before they figured out I was allergic to it. So that option is out now. I am scheduled to take tamoxifin for 5 yrs once all that is done. I feel like that is a pretty good treatment. I know everyone is different and must make up their own minds. With her2+, which I don't know enough about yet, is there other meds my oncologist didn't think to offer?

Robbin

Last edited by Robbin; 07-17-2007 at 07:32 AM.. Reason: didn't want icon at beginning
Robbin is offline   Reply With Quote
Old 07-17-2007, 07:41 AM   #2
suzan w
Senior Member
 
suzan w's Avatar
 
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
Hi Robbin, welcome! You have come to the right place to ask all your questions!!!! You did not mention how old you are, menopause status-can make a difference when deciding between tamoxifen or an Aromatose Inhibitor (like arimidex).
__________________
Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
suzan w is offline   Reply With Quote
Old 07-17-2007, 07:50 AM   #3
Robbin
Member
 
Join Date: Jul 2007
Posts: 6
HI,

I am 49 years old. I was still having a period before this all started but now, I am not.

I am having a hard time with this posting thing. Hopefully I'll get better. I posted a little different message because I didn't want that darn happy face at the beginning but, wasn't sure how to get it off. I not very good with computers.
Robbin is offline   Reply With Quote
Old 07-17-2007, 08:19 AM   #4
Hopeful
Senior Member
 
Join Date: Aug 2006
Posts: 3,380
Robbin,

I don't know what reaction you had to Herceptin, or how your doctor determined you were allergic to it. Herceptin can be prepared for infusion in one of two ways:

1) BWFI, USP, 1.1% benzyl alcohol preserved
2) For patients with known hypersensitivity to benzyl alcohol, Sterile Water for Injection

Perhaps you had an allergic reaction to the reconstitutive agent, and not the Herceptin itself? It may be worthwhile to ask your physician about it.

For information on Tamoxifen use in Her2+ patients, there is a good discussion in the current thread:http://her2support.org/vbulletin/sho...rid=1173<br />

Best of luck with your treatment plan,

Hopeful
Hopeful is offline   Reply With Quote
Old 07-17-2007, 10:17 AM   #5
Robbin
Member
 
Join Date: Jul 2007
Posts: 6
Hopeful,

Thx for your reply. I was kinda puzzled too. He first said it was the Taxol but then when I had my second treatment of Herceptin, without the Taxol, he said the reaction time had to make it the Herceptin. Now that I've had my second Taxol, and no rash, I guess it had to be the Herceptin. Although, I was not looking forward to the yr of Herceptin, It was that little extra chance and now I don't get that.

I will mention what you recommended tho. Thx

Robbin
Robbin is offline   Reply With Quote
Old 07-17-2007, 10:41 AM   #6
Hopeful
Senior Member
 
Join Date: Aug 2006
Posts: 3,380
One more thing

Robbin,

I should have asked you first time around, but are you getting pre-meds for the Herceptin (i.e., Benadryl)?

Hopeful
Hopeful is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 09:23 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter