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Old 09-12-2013, 03:09 AM   #1
Lien
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Location: Haarlem, the Netherlands
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Urgently needed info for a friend, treatment options for bone MARROW mets

A dear friend has been diagnosed with bone Marrow mets, as opposed to bone mets. She has been on Faslodex, but when her markers went up she started Everolimus. Unfortunately, she has been having a very severe reaction to that, so it looks like she will have to move onto a new combo.

She has had breastcancer several times, had mastectomies, chemo and rads.

As she is in the middle of a divorce and a move to a different State (new medical team too) she could do with all the help she can get.

So if any of you have any knowledge or thoughts (or both) on this, please let me know asap, so I can pass it on to her.

Love

Jacqueline
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Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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Old 09-12-2013, 01:36 PM   #2
tricia keegan
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Re: Urgently needed info for a friend, treatment options for bone MARROW mets

Hi Jacqueline and I'm sorry to read about your friend, I don't have advice as such but a friend of mine with mets tried Affinitor so perhaps she could look into that or Lani may have some suggestions for you and my best wishes to her.
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Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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