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Old 01-11-2011, 05:02 PM   #1
welovearizonasun@yahoo.co
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Hello Everyone,

I had my annual mammogram February 2009 I was diagnosed with HER2 positive breast cancer in May 2009 after several tests. I have gone through chemotherapy and I have one treatment of Herceptin left on 1/25/11. I have heard a lot of scary things about HER2 positive breast cancer being highly aggressive and I want to be sure that I know what to expect next. With the original breast cancer, I never had any real symptoms and I received the letter that my mammogram came out "normal. " It was only at the suggestion of my mammogram tech that I mention to my gynecologist her concerns that my right breast was starting to shift to the side, which I did at my exam the following week. So based on that information my gynecologist ordered an ultrasound which lead to other tests which confirmed three tumors and Stage IIB breast cancer. If it weren't for the technician mentioning her concern, I fear that I would not be living today and writing this posting. I have shared with her that she saved my life.

I would like to find out about nutrition and what I should or shouldn't be eating. I have heard to stay away from sugar and dairy products but have found conflicting data on several websites.

So any insight that you can give me as I take my first steps on getting on with my life after breast cancer would be helpful.

Linda
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Old 01-11-2011, 06:57 PM   #2
fauxgypsy
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Location: Mississippi
Posts: 600
Re: New to Message Board
Linda,
I found this board early in my treatment. I am not here very often now but there is a huge amount of information and support here. If you have any specific concerns it might help to search and see what has been discussed previously. There is also a specific message board on this site for Nutrition as well. Several of our Members are very knowledgeable on this issue. R. B. is one of these. Good luck and I think you can make many friends here as well.

Leslie
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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Old 01-12-2011, 06:43 AM   #3
Delaney
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Linda, hope you find all the information you need here. LOVE the little darling in the photo!
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 01-12-2011, 05:21 PM   #4
suzan w
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Re: New to Message Board
You have found a great site, don't be afraid to ask specific questions. Surf around the site as there is a ton of information! I, for one, am glad I had a her2+ breast cancer, because there is Herceptin to fight it !!! Also love the little girl and her shirt! I have a 2 year old granddaughter and she needs one of those shirts!!
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Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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