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Old 01-03-2010, 08:14 PM   #1
flynny
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Breast MRI

Tomorrow I head to Dana Farber for my 1st Breast MRI since I was dx in February 2008. I am feeling really good about it but I know as I start to drive down there I'll start to get a little anxious. I had a lift on my left side and since my final surgery in August it feels like shooting pains sometimes. I know its probably all in my head but I just want to know everything is all good for the rest of 2010. I'm praying for a clean slate this year. All good things need to happen for my family. I also got my period back in November (it had been gone since May of 2008). I had a horrible time and it lasted for 10 days and then returned in December not even 15 days after my last day. I just hope this month it isn't as bad. Its also confusing cause my hot flashes haven't been that much either. Not sure what this all means but I'm just trying to stay positive. Thanks for listening. Happy New Year!
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-Sarah-

Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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Old 01-03-2010, 09:28 PM   #2
Cal-Gal
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Re: Breast MRI

Good Luck Sarah!!!!
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DX: 11/08 Age: 53
Surgery: 1/09
Bilat Mastectomy, no reconstruction
ILC-4 tumors-1.7 cm,1.5 cm (2).8 cm
DCIS-11 cm
All tumors Grade 3
All tumors ER-0%/PR-0%
All tumors HER2+
IHC-all tumors Overexpression/borderline
FISH 2 tumors Her2-Negative
FISH 2 tumors Her2+ Equivocal
Stage I, 0/1 nodes
LVI-Indeterminate(treated as positive)
SPR Score 8/9
Ki-67 20%
BRCA genetic test 1/2=negative
Chemo: 6 rounds TAC Feb-June 2009 w/Neulasta
Herceptin: 6/12/09-6/4/10 52weeks
HNPCC genetic test: negative
Port Placement-9/23/09 Port Removal 6/25/10
Echo's every 3 months-All normal
2/09 Staging PET/CT showed 0.2 micronodule upper R lobe-lung-Onc does not think this is mets--
6/5/09 AND 10/09 CT scan 0.2 micronodule unchanged
1/10-PET/CT-uptake in nasopharynx-
1/10-MRI All normal
6/10-Bone Scan-clear
12/10-PET/CT-All Clear-NED
12/11-PET-All Clear-NED

12/12-PET-All Clear-NED
12/13-CT w/contrast Head, Torso-All Clear
12/14-CT w/contrast Head-All Clear
2/15-Core needle biopsy-R scar line

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Old 01-04-2010, 12:23 AM   #3
Mary Anne in TX
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Re: Breast MRI

Hey Sarah! I send my best wishes and prayers for an uneventful, boring, everything's ok visit!!! ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 01-04-2010, 05:59 AM   #4
whatz
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Re: Breast MRI

Wishing you a good trip and a clean bill of health via MRI :-)
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4/09 suspicious lump in left breast
5/09 biopsi lead to diagnosis ER/PR -
Her2+.Grade 3,full masectomy left breast,sentinel nodes clear,Stage 1
6/09 Adriamycin + Cytoxan 4 treatments (every 3 weeks) followed by Taxol + Herceptin, 1 treatment weekly for 12 weeks, followed by Herceptin for 40 weeks
MRI Brain 4/10 clear
CT Body 4/10 clear
PET Body 2/11 clear
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Old 01-04-2010, 06:44 AM   #5
lizm100
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Re: Breast MRI

Sarah-

From my personal experience, since being diagnosed with bc, I have become hypersensitive to pain. I know some of the aches and pains I now experience I would have ingnored b/4 but now my motto is when in doubt...get it checked out. It helps to ease to the mind.

Good luck Sarah.
I hope your MRI comes back clean
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Old 01-04-2010, 09:39 AM   #6
Shobha
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Re: Breast MRI

Sarah,

Happy New year to you too! Sending prayers for clean MRI results for you.

hugs,
shobha
__________________
DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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Old 01-04-2010, 03:24 PM   #7
Jean
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Re: Breast MRI

Sarah,
Think positive....and please know that I will be keeping you in prayer and strong wishes for a good report.

Happy New Year and Happy News.
Hugs,
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 01-04-2010, 06:05 PM   #8
Jackie07
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Re: Breast MRI

Sarah,

Thanks for the update. From what I've been reading, MRI tends to show more than we need to know. Don't get panic too quick if the film does show 'stuff' on it.

Oh, it is 'today' already. How did it go?

ps. Is that your family on the cover of Parenting magazine? Great picture!
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

Advocacy is a passion .. not a pastime - Joe

Last edited by Jackie07; 01-04-2010 at 06:07 PM..
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Old 01-04-2010, 06:10 PM   #9
Laurel
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Re: Breast MRI

Sarah,

Good luck tomorrow! I am no fan of those thumping machines! As for the return of your lovely, little friend, I think that is normal for your age. From your signature I am placing you around age 38, so you are too young for menopause and your system may just be waking up from all the chemo and trauma. I gotta admit I do not miss my little friend.

Hoping good things for you and your family. BTW, were you on the cover of a magazine? Looks like you and your family are on the cover of a magazine in your Avatar.
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Smile On!
Laurel


Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara

15 Years NED
I think I just might hang around awhile....

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Old 01-04-2010, 07:56 PM   #10
Ruth
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Re: Breast MRI

Sarah ~
Hope your MRI went well! My period returned after a couple years of absense and it was a bummer for me too. Periods were terrible at the beginning and seemed to last forever.
Hugs ~ Ruth
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[/SIGPIC]~~~~~~~~~~~~~~~~~~~~~~~~~~~

Diagnosed 6/03 nursing daughter
Dose dense A/C 4x
Modified rad mast 8/03
IDC; 3 cm; 10+/16 nodes; ER/PR-; Her2+++
Weekly taxol w/Herceptin (off label) 12x's
40 weeks Herceptin
Radiation 33x
Reconstruction w/ implants 05 & 07
NED
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Old 01-04-2010, 07:57 PM   #11
flynny
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Re: Breast MRI

It went well today except for the IV - I always practically pass out. The MRI itself went really well, I felt calm and and relaxed. I try to put myself in a euphoric spot. I met with Dr. Lin right afterwards and she did the typical exam and said everything felt good. She also told me she wouldn't have the results for 2-3 days. I hate the waiting game but that's what I'll do and not dwell on it. I truly feel good about today.

Laurel - I am turning 37 this March so you were close. I know that its probably better that my ovaries have started to wake up and I will embrace that and continue to stay in Tamoxifen.

Yes my family and I were in the cover of the parenting magazine/newspaper in New Hampshire. The magazine was looking for a young woman who was HER2+ and they contacted Genetech and then my contact there put me in touch with them. If you go onto their website www.parentingnh.com and look back to the November issue 2009. The only thing the reporter messed up was my staging she said I was stage 0 and I called her out on it immediately for the main reason of newly dx women (and men). I wouldn't want someone to think if rjey were stage 0 to go through 15 Mos of tx. She apologized and said she would do some kind of retraction on her other website. www.examiner.com. I was proud to try and reach out to other women out there and if it can just help one person I will be happy.

Thanks for all of your support and I will let you know what happens in the next few days. One more thing my doctor wants me to have a mammo. She said it shows calcifications more so than the MRI. So I scheduled that for January 14.
__________________
-Sarah-

Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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Old 01-06-2010, 09:39 PM   #12
flynny
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Posts: 275
Re: Breast MRI

Hi everyone! Just wanted to let you know my MRI was NORMAL. I am so relieved and now feel even better about my mammo next week. I figure if nothing was found on that then the mammo should look good (right?)

Thanks for all your thoughts and prayers, I really appreciate it.
__________________
-Sarah-

Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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