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Old 10-24-2009, 06:06 AM   #1
Midwest Alice
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Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
Herceptin NED IV discussion and poll on portocol

Hi Guys,
I meant protocol!

I’m doing a little study on us guys and gals who have been put on Herception only (at some point ) when NED, for more that a year.
My question is when Herceptin treatment was made indefinite:
Were you IV at first dx, became NED and stayed on Herceptin indefinitely?
Were you I-III, had a reoccurrence and became a IV, successful treatment to NED then put on Herceptin indefinitely?

I value this board and our knowledge and thank God for this place in space we have.
I have an appt, and have to run.. I hope there is some kind of logic to what I just posted. I hope to be on later today.

Love and hugs to all,
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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Old 10-24-2009, 08:27 AM   #2
Mary Anne in TX
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Location: San Antonio, TX
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Re: Herceptin NED IV discussion and poll on portocol

Hey girl!
I don't think it has anything to do with what's cooking in Washington. I think different places just have different policies based on the way they deal with the insurance companies.
My friends at the center where I go that are IVs stay on herceptin forever, unless of course they progress and play with their treatment to stop progression.
I'd dig a little deeper and see what's really up!
ma
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 10-24-2009, 08:49 AM   #3
Midwest Alice
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Join Date: Dec 2008
Location: Southern Indiana
Posts: 455
Re: Herceptin NED IV discussion and poll on portocol

Hey Mary Ann,
Thanks for the info on your friends that are IV at your center. My local onc said a IV would be on H forever. Thats the way I prefer to go, for now anyway. I see him in November.

Thank you Mary Ann
__________________
Alice
04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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