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Old 12-03-2008, 11:44 PM   #1
harrie
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quick note

Last weekend I had this stomach flu. But the good part is I have never had such a mild case of the flu before! Now this week I have had this sore throat for the past couple of days. I wish it would clear up. I would not be surprise if it turns into a big ol runny nose!

This is just a insignifcant minor kind of thead.
Please don't bother to post anyone!...really...

Just a quick note to let you guys know what I have been up to.
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 12-04-2008, 12:21 AM   #2
Bill
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Harricanarie! I'm glad you had only a "mild" case of the flu. I hope you knock out that sore throat thing. I think it's circling the globe right now over the last 6 months or so. I hate to tell you, sweetie, but you are the "vector". You've carried it from California to Hawaii. Unless I fly to your house immediately, and quarantine you down on the beach, the whole island could be infected. I can stop this pandemic right now, with your help. Don't ask any questions, Harrie, just do what I say. I need a tent and a weeks worth of firewood on the beach, and a 10 foot surf-casting rod. (this virus that you have is horrible, but there is an anti-body in the liver of the Hawaiian Lip-fish that can ease your symptoms) Also, I need some roasted/barbecued boar meat. (your husband can provide this) After ingesting the roasted boarmeat under the Hawaiian moon, I will become immune to your illness, so that I can continue to fish for your cure while you bring me fresh bait. Please, don't think! Time is of the essence. The health of the whole planet is at stake! The only bait that the Lip-fish will take is steamed shrimp, slathered in cocktail sauce. I need 2 pounds of bait per night. Please hurry, Harrie! PM me your credit card number and SSN, and I can be there tomorrow. It's getting cold where I live now, but I'm just worrying about getting snowed in, that's all. Also, I need 9 cases of beer in case of infection from fishing wounds. If it helps you, I can give you directions now to your nearest beach. Get a pencil ready. "Go straight, and stop at the beach"
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Old 12-04-2008, 01:06 AM   #3
Rich66
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Wow..when the next pandemic hits, I'm hanging with Bill...makes it one big adventure
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Mom's treatment history (link)
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Old 12-04-2008, 06:21 AM   #4
Mary Anne in TX
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The beach is definitely the "go to" place!
this must mean that you will be the "picture of health" for the holidays!!!!!!
Believin' ma
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MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 12-04-2008, 07:48 AM   #5
Jean
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Hi my friend! I am sorry to hear you are fighting the nasty flu...did you happen to have a flu shot this year?
Just curious....

I have found that when I have the start of any kind of sore throat issue....or my family...I take a glass of warm
boiled water and add to it Hydrogen Peroxide and gargle every hour to wipe out that sore throat. This works especially well in the early stages of a sore throat most people wait until their throat really hurts. This will help to heal the infection. Try it - it works....

Feel Better,
Hugs,
Jean

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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 12-04-2008, 01:01 PM   #6
schoolteacher
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Hope you get to feeling better. I could use some beach time also for my vitamin D.

Amelia
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Old 12-04-2008, 01:08 PM   #7
Believe51
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Harrie

How can you expect me not to reply to your thread?? I will take any opportunity to hear and reply to anything you have to say!! So.....hi, Harrie....hope you are feeling on the top of your game very soon!! Sending love>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!

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Old 12-04-2008, 02:29 PM   #8
Mary Jo
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.......but Harrie....I WANT to post. I want to tell you to feel better soon and to keep those germies in Hawaii. Geez, I have all this snow and cold and you have warm weather and sunshine...I think it's only fair you keep the germs where you live.

Deal...................

Mary Jo
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 12-04-2008, 10:59 PM   #9
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Flueneza (sp) report from rainy Oregon. The good news is that it is not raining, we have sunshine, I had a flu shot and the flu bug has not hit our house. If it hits, I will call Bill for his credit card, go online with Expedia and book 2 first class tickets to Hawaii. Then I will take a taxi to the beach and move into the tent that says HER2 Huilani. (Melekelkimaka, I do not know what Huliani means) Anyway, I am there in spirit. I have no idea how to catch a fish, let alone find its liver. Once I am on the beach, I will ask the locals and after a long conversation, I think all will be right with the world.

Mahlo and good night, thanks for the fun, Catherine
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Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
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Old 12-04-2008, 11:48 PM   #10
harrie
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You guys are a RIOT!!! LOL!!!!
Jean, I think the last flu shot I got was maybe 6 months ago or more? Must have worked because it was so mild!!
Sore throat...much better already. I like to gargle with a bit of LIsterine.

WB....good plans...guess that is why this place is considered such a healing place. I think we should add to this a nice massage on the beach to help prevent possible muscle aches. Oh yes.....and I think I would prefer some taquilla from my marguarita too keep that bactercial count down in my throat.
Like they say...prevention is the best medicine!!
BUT....if worse comes to worse, ....and things get REALLY out of hand, they just might quarantine all of us here for a verrrryyyy lonnnngggg time...if we are lucky!!
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 12-04-2008, 11:51 PM   #11
harrie
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PS...Catherine...."her2huilani"...that is funny!!
Hey maybe if we are all stuck over here we can rename our group: "wahine2support" since wahine means female and her means...well you get it??!! LOL!! I'm tired...going to beddy bye...
Goodnight gang...love you!!
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 12-05-2008, 06:14 AM   #12
WomanofSteel
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Harrie, sorry to hear that you have been sick, but glad you are feeling better. I like the idea of renaming our little group Wahine2support, it would make us all feel a little tropical this cold winter season. We were actually planning a Hawaii trip before I had my reoccurence and since we couldn't do it at the time, we had a Hawaiian Christmas last year. We had a palm tree for our tree and many tropical decorations. We also played Hawaiian Christmas music. It was one of the nicest Christmases I ever had. So, all I can say now is Mele Kalikimaka.

__________________
dx aug 03
invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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Old 12-05-2008, 06:40 PM   #13
naturaleigh
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WOW Bill

I am so grateful to have someone that would put himself in harms way to save the planet. And to do it single handedly, What a guy!! I can't believe the lengths you are going just to save us from the terrible pandemic, how on earth can we ever repay you??
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Anita

er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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Old 12-05-2008, 06:51 PM   #14
naturaleigh
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Wink

Harrie,

I am so glad your flu was short lived. I hope your sore throat feels better real soon.

Thanks for checking in
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Anita

er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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Old 12-05-2008, 07:10 PM   #15
naturaleigh
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Bill

Your bravery has got me motivated and I hate you are having to do this alone. If you could send me your credit card number I would be more than happy to bring several bottles of scotch for back up just in case the beer doesn't work. It too, might warm you up a bit faster than the beer, so you don't have to waste a single minute to start fishing for the lip fishies.
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Anita

er, pr-, Her2+++
Stage 2b, grade 3
negative nodes
4 rounds AC
3 months of weekly taxol
1 yr of Herceptin
Finish Herceptin May 2007
35 rounds of Radiation
Reconstruction completed Dec 2007
Implant replaced due to infection Mar 2008
4 Years NED!!!
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Old 12-05-2008, 08:25 PM   #16
Joan M
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Maryanne,

I hope you're feeling better!

Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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Old 12-06-2008, 12:21 AM   #17
harrie
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Woman of Steele...so you made a Hawaiian Christmas in NJ!? Your Christmas tree looks more tropical then some of ours over here with all the fake snow!

Well sure enough....my sore throat cleared up and now I have a little cough and maybe a runny nose. ( I say maybe cuz it was a little runny but now it isn't)
hahhaahaha!!
__________________
*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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Old 12-06-2008, 06:48 AM   #18
Sheila
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Harrie
Glad you are feeling better, I had the same thing, and I did get the flu shot...it is going around here like crazy!
Believe it or not, the Electric Utility my husband works for here in IL, sent everyone a "kit" with prescription meds and all the necessary items in case there is an Avian Flu Pandemic....kinda scary that they are thinking that way....it contained 2 cases or antiviral wipes , thermometers, Relenza etc...everything but beer and fishing poles Bill!
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 12-06-2008, 04:14 PM   #19
ElaineM
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Wink quick note

Glad to hear you are feeling better Harrie. Do like I do.
Blame all the sinus, cold, cough stuff on vog or the air conditioning in the doc's office. Sorry about that. I know you live on the Big Island.
Hey, Bill. Don't get lost if you wander off on some deserted beach or take a walk in the mountains.
That happens occassionally and they have to send helicopters up to find them. We don't want to see you on the news being rescued, although that would make interesting conversation here.
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Peace,
ElaineM
12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
Lucky 13 !! I hope so !!!!!!
http://her2support.org/vbulletin/showthread.php?t=52807
14 Year Survivor
http://her2support.org/vbulletin/showthread.php?t=57053
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 12-10-2008, 04:18 PM   #20
juanita
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had the sore throat and runny nose. couldn't talk for a couple days and that might not be a bad thing.
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dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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