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Old 08-13-2008, 09:52 AM   #1
MJo
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Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
Update on New York Area Gathering

New York area group members:
We would like to meet at noon on Saturday August 23 at the South Fin Grill in Staten Island. Visit the restaurant website here. http://www.southfingrill.com/ Please send me a private message if you can make it and Joan will make reservations. Tomorrow is her lung surgery.

Bill and Christine -- Getting together in New York in September sounds wonderful. Let's plan on it.
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MJO

IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 08-13-2008, 11:33 AM   #2
Jean
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Location: New Jersey
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I am sad....that I will not be able to join in the fun!
It is my son's birthday and I am giving a dinner party
for him.

I really hope this is planned again (real soon)...


Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 08-13-2008, 04:15 PM   #3
Bill
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Hey MJO! Christine and I would love to get together with you in New York in September, but can we bring Joe, too? Otherwise, it might seem, you know, "awkward".
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Old 08-13-2008, 06:47 PM   #4
Joan M
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The date is not yet set because we haven't gotten a consensus from those who have shown an interest in meeting, on whether Aug. 23 or 24 is the better date. When we get some feedback, we'll let you know for sure. Thanks.
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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