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Old 06-04-2008, 04:06 PM   #1
Patb
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CT of Chest question

I had a CT scan of chest, lung area yesterday.
Report said one tiny pulmonary nodule in upper
lobe which would require follow up evaluation in
six months. My Dr. did not even mention it when
he called and he said everything was ok. I always
get the written report and saw this. Is there anyone
who knows about this and what could be done if
anything for follow up? Thanks for any information.
Test are so stressful but I did ask for the scan of
chest, abdomen, and pelvis. This is my two year
anniversary since bc surgery and I felt it was time
for a check-up.
patb
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Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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Old 06-04-2008, 04:12 PM   #2
ElaineM
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CT of chest

Hi,
Good for you getting copies of all your tests. I don't know what the problem is, but if the prescribing doctor doesn't tell you what that means you might want to ask another doctor. That is what I do.
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Old 06-04-2008, 08:16 PM   #3
PinkGirl
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I had two small nodules show up on a CT scan. They are in my right lung, same side as the cancer.

I had a CT scan 3 months later and they had
not changed in size. 3 months later, I had another
CT scan and they are still the same size.

I did not have radiation so they are not from that.
My onc. thinks they are probably from previous lung
infections (bronchitis).
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Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
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Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09



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Old 06-04-2008, 08:40 PM   #4
chrisy
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Pink girl is right. This nodule could be from before and have nothing to do with cancer. Most lung nodules are nothing to worry about. If it's tiny, it would probably not be evaluable on a PET scan, so the follow up you would expect is to repeat the CT scan and see if there are any changes.

Tests are stressful, but try not to worry. Your doctor doesn't seem worried, take that as a good sign.
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
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Old 06-05-2008, 06:04 AM   #5
MJo
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I also have one tiny lung nodule. I've questioned the oncologist about it. His answer "I've seen a lot of those. It's nothing to worry about."
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
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Old 06-05-2008, 07:31 AM   #6
lynnw
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Hi,
Just wanted to share that I have two small lung nodules being monitored since October 2006. I've had several repeat CTs, at 3 and then 6 month intervals, and there has been no change. I will have one more CT, but my onc and the radiologist attribute the nodules to radiation.
Take care,
Lynn W
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Old 06-05-2008, 08:09 AM   #7
nitewind
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Hi Pat, just wanted to chime in here with the other girls. I had my scan done a few monthes ago and it showed something on my upper right lobe (cancer side). My doc said we would keep and eye on it but he didn't seem worried. He and my onc said this happens a lot with radiation. Try not to worry to much, your doctor will keep track of it.
Hugs
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Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
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Old 06-18-2008, 10:41 AM   #8
TSund
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Ruth also has tiny nodules showing on CT scan that they say is probably past or present infection. Sometimes happens with chemo I guess. They say no sign of cancer, thank goodness, but they have postponed her port removal, I suppose on that small chance that it is something else. Ugh. Hate the wondering. She will be scanned again in July.
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Ruth dx 05/01/07 (age 50) Filipino
multifocal, several tumors .5 -2.5 cm, large area
Breast MRI showed 2 enlarged nodes, not palpable
100%ER+, 95%PR+, HER2+++
6x pre-surgery TCH chemo finished 9/15/7 Dramatic tumor shrinkage
1 year Herceptin till 6/08
MRM 10/11/07, SNB: 0/4 nodes + Path: tumors reduced to only a few "scattered cells"
now 50% ER+, PR- ???
Rads finished 1/16/08
Added Tamoxifen,
Finished Herceptin 05/08
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Old 06-18-2008, 11:37 AM   #9
Jean
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Hi Pat,
Me too! Have been watching a tiny nodule which has not changed in three years.

Best of luck!
Jean
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Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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Old 06-18-2008, 01:28 PM   #10
Patb
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Thanks Jean I will be scanned again in September.
My problem is that I wanted to be scanned before
any treatment as a baseline but it wasn't protocol.
Therefore they do not know how long it has been
there. Take care.
patb
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patb

Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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Old 06-18-2008, 05:13 PM   #11
Joan M
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Hi Pat,

As mentioned in my PM, it would probably be okay to wait until September if you're comfortable with that.

Even though we get guidance from our oncologists, we also have to go with what feels right for us, and each of us will vary in how we feel.

Best, Joan
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Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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