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05-12-2008, 07:29 AM
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#1
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Senior Member
Join Date: Jul 2006
Posts: 869
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Lung Nodule...again
Hi Everyone and belated Happy Mothers Day to all moms! I am so sad as the lung met is back after confirmation by the biopsy last week. Since this is the 2nd time while on herceptin alone, I have restarted xeloda and begin tykerb this week. I hope I can achieve remission again but am starting to feel lost. I know I should be grateful for the good reports. Ceesun
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05-12-2008, 07:40 AM
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#2
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Grateful feels better than ungrateful, but there is no rule that we have to feel grateful all the time. Chronic illness is a pain in the a--. I'm don't have chronic cancer, but I have asthma and chronic pain from arthritis. I'm not grateful for my chronic illnesses. I am grateful for my garden. God help me, I'm also grateful for the mall. I love the mall. If there is only one thing to feel grateful for, maybe you can focus on that and feel a little better. I also believe that you can be NED again. I think your treatment will knock that pesky met out.
Cure Stage IV - one met at a time!!
__________________
MJO
IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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05-12-2008, 07:47 AM
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#3
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Senior Member
Join Date: Apr 2008
Location: WA State
Posts: 199
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Ceesun,
I'll be remember you in my thoughts and prayers that the new treatment will just kick that met out. I will be focusing that God and the meds will have you back NED. Keep your head up and keep fighting. You can beat this!
Cindy
__________________
Cindy
L/IDC, 1.2 cm, Stage 1, Her2+, ER+/PR+ at age 48
4/15/2008 Lumpectomy + sentinel node biopsy
Margins neg and Nodes neg (2 tested)
MUGA score 55 on 5/6/2008
Treatment starting 05/08/2008:
Chemo 4 cycles, 3 weeks apart with Taxotere & Cytoxan - Chemo - Done 7/24/2008!
Herceptin for 1 year
Radiation starting in 9/2008
MUGA score 61.9 on 9/04/2008
33 Rads with boost - Done 10/13/2008
MUGA score 58 on 12/01/2008
MUGA score 59 on 3/16/2009
Herceptin for 1 year - Done 4/27/2009
MUGA score 64 on 6/22/2009
All scans - NED 6/24/2009
MRI - NED 11/10/2009
All scans - Still NED 8/25/2011
Still NED 2017!
I am calling this my pink journey
Follow my journey into the pink at my blog here
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05-12-2008, 08:41 AM
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#4
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Ceesun,
I am praying that the pesky met is kicked to the curb with your new treatment regime.
Don't feel "lost" - your docs have started you on this new combo that will take care of it.
Keep the faith.
all the best
caya
__________________
ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08
Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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05-12-2008, 10:38 AM
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#5
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Senior Member
Join Date: Nov 2004
Posts: 190
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Ceesun,
A single nodule can also be knocked out with radiation. Don't forget to look at that in combo with your T/X
Kim
__________________
8/98 dx right breast
5/2003 tram flap right breast
8/2004 dx new primary left breast with inflammatory bc
er/pr-, her2neu+++
8/19 taxotere and herceptin
1/15/2005 Navelbine/Herceptin
4/2005 radiation and Herceptin
5/15/2005 Herceptin alone
2/12/2008 skin biopsy positive
2/14/2008 met to sternum, possibly right breast
2/27/08 Start omitarg, herceptin, taxotere trial
3/17/08 Kicked off trial because I started too close to my last herceptin
3/19 start tykerb xeloda
Right breast confirmed met
5/15/08 skin mets gone, no hypermetabolic activity in breast, sternum healing
8/24/08 scans still look good. sternum still active with scarring. No evidence of progression
10/08 Progression in sternum
12/08 Start TDM1 trial
1/09 Scans show stable
12/09 1 year on TDM1 still stable
10/10 progression in chest and liver
11/10 false positive of liver mets; tykerb and herceptin
4/11 Tykerb/Herceptin/Xgeva
4/11 Rads to Sternum
5/12/12 NED Herceptin/Zometa
3/16/19 still NED Herceptin/Zometa very 6months
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05-12-2008, 06:39 PM
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#6
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Hi Ceesun,
Sorry to hear about your lung nodule. I can relate to how you feel. I was very disappointed that about having a lung wedge resection a year ago, another nodule has developed in the area of the surgery.
Is it possible to have the met surgically removed. Depsite the nature of metatstatic cancer, surgery is considered curative even in that setting because the nodule removed can never come back.
Also, as Kim mentioned radiation is another possibility, such as stereotatic radiotherapy, as well as radiofrequency ablation.
Tomorrow I'll be checking into both of these procedures as alternatives to more lung surgery (if you can believe that surgery is still an option!).
Since I have only one small nodule again (8 mm), I'd prefer not to do chemo if possible, so I'm checking out these other treatments.
Is the lung nodule the only met you've had?
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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