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Old 09-11-2007, 08:57 PM   #1
Julie2
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Join Date: Sep 2005
Posts: 556
Anybody is controlling their mets just with Herceptin?

Anybody is controlling their active mets with just being on Herceptin without chemo?

Thanks,
Julie
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Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 09-12-2007, 02:30 AM   #2
jhandley
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Location: Melbourne Victoria Australia
Posts: 330
Smile 2 years remission

Hi
I had a 15 mm liver spot 2 yr ago..had 6 x taxol/Herceptin. The spot disappeared after 9 weeks and has not returned. Have been on H only for nearly 2 years.
Jackie
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Old 09-12-2007, 08:43 AM   #3
kareneg
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Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
Hi,
I had a 2 1/2 year run with just herceptin and had two tumors in my liver during the whole time.
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Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 09-12-2007, 08:54 AM   #4
Lee
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Join Date: Jan 2006
Posts: 58
I had 3 spots on my liver and 1 on my pelvis, which disappeared pretty quickly after starting chemo in 10/05 (Carboplatin, Taxol, Herceptin). I've been in remission ever since chemo ended on 4/06, just on Herceptin every 3 weeks.
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Old 09-12-2007, 12:36 PM   #5
Andrea Barnett Budin
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Join Date: Oct 2005
Location: LAND OF YES! w/home in Boca Raton, Florida Orig from L.I., N.Y. Ever hovering IN THE NOW...
Posts: 1,904
Wink Vitamin *h* Is My Friend And Ally!

HI! I've been on Vitamin *H* since '98. No mets. Sticking w/the program. Don't want to fix what isn't broken. Have multiple oncs and all concur, including Pegram UCLA as of Feb '06. I believe H is keeping me alive and well. Wishing all my sweet Sisters NED... With LOVE ALWAYS...
ANDI
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Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 09-12-2007, 04:57 PM   #6
mrsd
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Location: Nova Scotia, Canada
Posts: 40
I have been controlling my mets to lungs, lymph nodes, and sternum with Herceptin alone. Although we had to add Ardenia for the bones and do 5 rad treatments for sternum this summer I have not had to have any of the "heavy stuff" yet and hope to never have them. Since last August all tumors have reduced significantly and my onc is very happy with the results. We do CTscan every three months to see how much more reduction there is. When I was first diagnosed Heceptin for stage I was still in clinical trials so I didn't recieve it then.
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Intial Dx Sept3,2002, age 39
Masct/ Sentinel Node Biopsy Sept 11,2002 node negative
ER/PR- Her2+++, grade 3
Started AC Chemo Nov 2002, 4 rds
2003 NED
May 2004 reconstuction, saline and later silicone implant
Aug 2006 Dx recurrence, lymph nodes chest/lungs/sternum
Dec 2006 Herceptin q three weeks
May 2007 bone mets to sternum
June 2007 aredia for bone mets
June 2007 radiation to sternum X 5
June 2008 slow progression of lung met, all other mets NED, continue Herceptin, Aredia, add Xeloda
July 08 Stopped Xeloda, severe side effects from the drug, but it did a fantastic job after only 12 days at least 50% reduction
Feb 09 Started Navelbine with herceptin, slight progression in lungs.
July 09 - Nov 09 had a Navelbine holiday...
Nov 09 back to Navelbine, Herception
Feb 10, lungs have improved but 4 small lesions on liver, started Taxol, Herceptin....
Taxol not the magic drug for me
Continuing Herceptin,Aredia,and adding Xeloda once again..reduced dose
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